Rapid Decline - Not a UTI

Poor guy—that would be scary! I bet he was glad to see you! I haven't personally, but on this board over the last couple of years I have seen several times that someone declined quite rapidly. Sometimes they did return to their previous baseline before gradually declining, but sometimes the situation after the decline becomes the new normal.

My husband started these same behaviors appropriately a year and half ago, and I felt it was the beginning of stage 6. The waking up in the middle of the night and getting dressed is really tough, as we as caregivers need our rest. He did seem to start these behaviors of fragmented sleeping and challenging communication all at once but he had been hallucinating for quite some time. Medications from your PCP can help with sleeping, although it has been a process to find the right combination and strength that really helped. I agree that it sounds like he should no longer be left alone. Just this week my DH was approved for hospice.

Sounds like my DH. We went to a wedding out of town. I went the day before for him to settle in, but it didn't happen. We went to bed at 9 pm, and I was awakened at 3 am by security guards who found him on the 4th floor; we were staying on the 9th floor. I never heard him leave the room. Scared me to death, we were in New Orleans French Quarter. He could have slipped away and never been found as he had no ID and was in his underwear: rapid decline, so no more. I will have to block all the doors at home. I will need an ID bracelet. He is now obsessed, agitated, and pacing the floor. He has not said anything intelligible in the last week or two. He was diagnosed in July 2023. No UTI, just so sad. And I'm very frustrated with his constant interruptions. I wish you the best on this horrible journey.