Introducing myself.......

Shelly / Texas · July 30

Hello everyone,

Like many others, I've been lurking on this site on and off for months. It has been both knowledgeable and comforting to have you all as a resource. Thank you. I no longer feel alone.

I am caretaker of my DH of almost 30 years. His symptoms have gotten progressively worse over the past 3 years. Same old story, in the beginning I just thought his behavior was due to loss of hearing, depression over the sudden death of his brother; anything but what I now know it is - dementia.

The sadness can be overwhelming because I miss what we once had. Some days I feel blessed that I get this long goodbye, other days I fear what the future brings.

I just ordered the book "The 36 Hour Day" and know I will continue to learn to navigate this disease. I appreciate this forum and each of you. ~ Shelly

midge333 · July 30

Welcome!

trottingalong · July 30

Welcome. I hear you. I too miss what we once had and fear the future. For now, my DH can still make me laugh out loud. I treasure those moments.

Caro_Lynne · July 30

Hi Shelly. This forum is like an outlet for me. I've learned and continue to learn so much from the many members that share their experiences and knowledge. Welcome xo

Anna2022 · July 30

Welcome, Shelly! I'm sorry you have to be here but this is a great group and your participation is needed!

It is indeed a journey, and as they say, if you've seen one person with dementia, you've seen one person with dementia. Still, there are many common themes that play out even if the specific details are different. This forum has been the best source of information and support that I have found.

My DH was dx with MCI in August 2022, although behaviors started to show well before that. I spent considerable time in 2021 and 2022 trying to get DH to agree to be evaluated (anosognosia is a &%*#&). We've had an MRI, PETScan, MOCA and the like but the docs won't label him, yet. All the signs point to Alzheimer's. And indeed, it is the long goodbye.

BTW, I am from Central Texas!

Shelly / Texas · August 3

https://alzconnected.org/discussion/comment/217505#Comment_217505

Hi Anna, I am also in central Texas. Hays county between Buda and Dripping Springs. Are you in the Austin area?

M1 · August 3

hi Shelly and welcome. My partner grew up in Weimar and never lost her Texas twang. These days it’s her fantasy that her mother is still there and she wants to go back. There is still a bumper sticker on our old beater truck declaring “don’t mess with Texas.” Biggest compliment she ever gave me was when she told me I could be an honorary Texan😉

Anna2022 · August 3

https://alzconnected.org/discussion/comment/217916#Comment_217916

Yes, we are in the Austin area.

Introducing myself.......

Comments

Commonly Used Abbreviations

Community Guidelines

Categories