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I would like to speak with someone else who has Alzheimer's

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  • ricardo
    ricardo Member Posts: 189
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    Member

    Cannabis anyone?

  • ricardo
    ricardo Member Posts: 189
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    Member

    Having a good day so far. Anybody around?

  • ricardo
    ricardo Member Posts: 189
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    Member

    still here

  • vaagesen
    vaagesen Member Posts: 4
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    Hi Ricardo, My Name is Vicki and I am a very active 81 year old. Still taking care of my self, still driving, very independent, and living alone This past Friday I was diagnosed with early onset Alzheimer's. I am not sure what drugs would be a good choice. My Dr has recommended lecanemab, but it is so expensive (Blue Shield in CA doesn't cover it) and I have concerns about the brain bleeds. Any suggestions?

    Thanks Vicki

     

  • Iris L.
    Iris L. Member Posts: 4,412
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    Welcome, Vicki. How are you doing? I'm sure you mean you were diagnosed with early stage AD, because early or young onset AD begins at age 65 or earlier. Have you had a PET scan to diagnose amyloid buildup in the brain?.

    Iris

  • hanail
    hanail Member Posts: 2
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    Member
    I was diagnosed with Alzheimer’s this month (Sept 2024). I was given a PET Brain scan in which the beta amyloid plaques were clearly visible, this confirmed the ALZ diagnosis. I am in the early stages, I am somewhat forgetful but fully functional. I am taking memantine and donepezil and in the process of getting insurance approval for leqembi infusions. I’m 72 and my wife is my cheerleader, prayer warrior and biggest supporter! My children are huge support as well! I’m not looking forward to traveling this road, but I know I’m in God’s hands and I trust Him completely!
  • David1946
    David1946 Member Posts: 768
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    Hi all, I have been on the waiting list for the local Veterans Home in Boston for almost a year and my wife got an email today saying sometime probably in November the Veterans will want to see me again and see what type of help I may need do to my dementia. Depending on what they say I could be in the Veterans Home by the new year.

  • Iris L.
    Iris L. Member Posts: 4,412
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    Welcome hanail. You sound like you're getting the current treatment. I hope you do well.

    Iris

  • Iris L.
    Iris L. Member Posts: 4,412
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    David, I'm glad the VA has a spot for you.

    Iris

  • llkahl
    llkahl Member Posts: 6
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    Member
    https://alzconnected.org/discussion/comment/224331#Comment_224331

    If you want to, search ‘llkahl’ and read my 8-29 post. Sound familiar?

  • hanail
    hanail Member Posts: 2
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    https://alzconnected.org/discussion/comment/224348#Comment_224348

    Thank you Iris!

  • David1946
    David1946 Member Posts: 768
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    https://alzconnected.org/discussion/comment/224349#Comment_224349

    I will let you when I have a date.

  • Watson1
    Watson1 Member Posts: 22
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    Member

    dear profsnow ham a vermonter with alzheimers for over a year longer for sure. just finished a painting i struggled with for several days. i paint every day but continuity is becoming more of challenge. to much monkey brain. routeens, constantly keeping tract. i don't drive anymore but have an ebike for town quite alzy friendly with a slow learning curve but wonderful spirit lifter. we alzheimer folks are quite a bunch and we like to have friend especially since many of ours are turning away. hi

  • Iris L.
    Iris L. Member Posts: 4,412
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    Welcome Watson. It's nice that you can get around town on your e-bike.

    Iris

  • David1946
    David1946 Member Posts: 768
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    Good morning everyone, I do not know who has been following my journey but my nightmares seem to be returning they are getting more and more frequent . I am seeing my neurologist after the first of the year and I will tell her what is going on and see what she says maybe she will increase my Quetiapine or give me something else. My wife says if it gets to bad she will try to get me an earlier appointment.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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