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Loss of Spouse, and moving to AL advice needed

MaryEllenDaughter
MaryEllenDaughter Member Posts: 29
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My mother passed away one month ago of cancer, my Dad has Alzheimer’s. He was there when she died at home. He knows she died but does not remember being there. It is so hard to watch be traumatized over and over again, although things are starting to become more about how long he has been alone than when she died. So some progress. My Father really cannot live alone and the stress of the last few months with her being sick and dying has really impacted his disease progress. I am his health Proxy, but my brothers and I have all agreed he cannot live alone. I have put in an application at a lovely facility, but how and when do I bring it up? I do not want to lie and he still has remarkable moments of clarity. With all the trauma he has had this seems like I am adding to it. We all live out of state, but this place is closer to me than there home. Any advice on moving a parent who does not want to leave and just wants to cry and mourn his wife? My heart aches for him.

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  • M1
    M1 Member Posts: 6,788
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    edited October 22

    Welcome to the forum, and I am sorry for your losses. This is a very hard situation.

    I think most here would tell you that you don't discuss the move with him ahead of time. He won't know what you're talking about, and it will only distress him. I understand not wanting to lie to your dad, but honestly, the best answer here is the one that brings the most comfort. My partner cannot remember that her parents and sister have died, so we talk about them as if they are still alive.

    Get the staff to help you; they've done this before. As you're pulling up to the facility, you say you're going for lunch, or that you've found this nice place for him to stay while the house is painted/cleaned, whatever. That's it, you let the staff take it from there, and you slip out. Then you follow their advice about when you come to visit.

    IIt gives me some pause if you are far away from him. With nearly three years in memory care behind me, i can't tell you the number of urgent trips/ meeting them at the ER, etc. You may need to consider moving him closer to you if you are the POA.

    edited to add: don't be surprised if he needs more than a hospitality model assisted living. By the time most families consider it, memory care is what is needed. This is very common.

  • H1235
    H1235 Member Posts: 576
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    I’m so sorry for your loss. Welcome here! I personally would not give him much advance notice. I assume you and your siblings will manage the move. My brother left mom in charge of packing for the move and it was a nightmare. The sooner you tell him the more time he has to fret, worry and worst case decide he is NOT going. Depending on where he is at, some have suggested telling a LO the move is temporary, hoping they will warm up to the place and stop asking about their house. That doesn’t work for everyone. We did not present the move to my mom as an optional thing (she would never have chose to go to AL). You might want to consider what you will say or do if he refuses. Mom puts a lot of weight in what the doctor says(even if she doesn’t like it) and the doctor said it was a good idea, so she very reluctantly agreed. Who would your dad be most likely to listen to? Would being closer to grandkids help convince him? Maybe just suggesting it would be good for him to be closer to family now that your mom is gone. Has he seen a doctor for the depression. An antidepressant might be good for him. You mentioned you are the healthcare proxy, what about DPOA. If one has not been assigned I would look into it. You will need it. Good luck.

  • MaryEllenDaughter
    MaryEllenDaughter Member Posts: 29
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    I have been trying to find a place closer but there are so few beds. He is at that point of knowing everything that happens, until he doesn’t. The place specializes in Memory care for all assisted living and skilled care residents. I am health care proxy, and medical POA another family member does the financial aspect of the POA legally. Grand kids are way out on the west coast.

  • MaryEllenDaughter
    MaryEllenDaughter Member Posts: 29
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    The place specializes in Memory care for all assisted Living Residents. He has actually take exercise classes. The trip without traffic is 50 minutes or so, so it would depend on the hospital he would need. I have worry about emergancy room trips etc as well. He is having period cancer treatments (immunotherapy) so we decided this may be better for now. If it does not work, then we will move him closer. The places near me in Massachusetts are very crowded, and Maine has very few specialty places.

  • MaryEllenDaughter
    MaryEllenDaughter Member Posts: 29
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    Thank you all for the advice about the move. Good news is he takes classes at the place we are looking at (they took the summer off for my Mom’s health), so he knows it and they know him.

  • AmandaF
    AmandaF Member Posts: 19
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    I'm sorry for your loss. We were in the same position, but it was my dad who passed away and my mom who had dementia. She understood what had happened at first, then seemed to forget and would get confused and upset by cards and phone calls expressing condolences. She wasn't safe to live alone, wouldn't move willingly, and wouldn't accept help at home (and really, home was a sad place for her without my dad), so we found a facility and used the approach M1 described above. We planned it out with the staff ahead of time, told her we were taking her to lunch, accompanied her inside, then slipped out. It was a tough transition for all of us, but I do think having the structure and social interaction that the facility provided helped my mom grieve. Six months later, she's doing well there. We do appreciate having her near us so we can check in easily. Sending good thoughts.

  • Victoriaredux
    Victoriaredux Member Posts: 93
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    "I do not want to lie and he still has remarkable moments of clarity." Yes, they can - I've watched a PWD have a meeting with a lawyer - catch typos in the documents, use perfect manners , make jokes and at the end ask why a never met long dead relative wasn't getting "something at least " in the will. So we plan for their worst moments because even if they are crisp for a bit— they probably won't remember it and their judgement isn't dependable.

    How advanced are some of the patients at the home you are considering? If it doesn't seem they keep clients past a certain point then keep actively looking for a place where he can stay until the end.

    It can be hard when one person has the money strings and the other the care responsibilities - if you haven't already I' d work out a system with your relative so you can access your mother's funds for the extras you'll need to supply . Like a cash card tied to her funds - and you send the receipts. Sometimes people pick their DPOA just thinking of executor duties and not the management of their care while still alive.

    Lesson hard learned - if he gets sent to the ER and it is a quick - "ok nothing broken- can go back home" will the home bring him back if you aren't available - or would he be on his own if you can't make it ? If so work out how he would be transported and how his insurance works to avoid a big bill and/or insurance appeal - which would fall to the DPOA to manage.

    I'm sorry about the loss of your Mother.

  • jfkoc
    jfkoc Member Posts: 3,876
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    You mention specialized. Exactly how are they specialized? What training program is used for new staff as well as ongoing. Aske them to send you a copy of the placement agreement and also current license.

    Lovely is good but staff is 1000% more important.

  • MaryEllenDaughter
    MaryEllenDaughter Member Posts: 29
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    This place will keep him through Hospice, even if he runs out of money. We expect to have 4 years of finds after the house sale and probate. He remembers she died but is upset he cannot remember details. The antidepressant is helping though.

  • MaryEllenDaughter
    MaryEllenDaughter Member Posts: 29
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    I am sorry for your loss as well, it is a tough position

  • MaryEllenDaughter
    MaryEllenDaughter Member Posts: 29
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    It is Called Live Well, all they do is memory and dementia care. It is not a typical nursing home or assisted living place.

  • Victoriaredux
    Victoriaredux Member Posts: 93
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    Ah, I found a listing - that sounds like a "licensed board& care home' where I am. 5 or 6 residents max - 2 staff during the day, one at night.

    You can read the facility inspection reports on line in my state.

    I'd ask what training the staff has , do they live in . Drop by a few times at different times of the day to see the meals they serve , how the place smells [ incontinence issues], are residents talking , socializing .etc.

    If you find a good b&c it can be great and saves a lot per month versus the large homes with their layers of staff and admin. Be sure that that level home can accept medicaid when her money runs out. That type home is not in medicaid in my state .

  • NizhoniGrrl
    NizhoniGrrl Member Posts: 88
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    It sounds like you are on the right track and may have found a great place! I think the move itself is a strategy, carefully planned, and you may need to call in a small army to make it as quick as possible while someone takes him out for an outing. Since he knows the place, they may even be able to do the part where he is occupied for a full day while your troops pack what you’ve already decided is going into his new apartment. I wouldn’t get into this with him until it is done. He might agree or he might not, and the stress of might not won’t be good for him or you. Convince him after that it was the right move. In the meantime, if you can increase his visits and the activities he attends, thy might make the change smoother.

  • MaryEllenDaughter
    MaryEllenDaughter Member Posts: 29
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    The social interaction is what he needs to be honest, they live in a rural area right now and if it were not for my mother’s efforts he would never see people.

    We have a move in day. I am a nervous wreck! He is sad but knows he cannot afford the big house he is in.

    I have no sense of smell, however I was a CNA for years before college and the skilled care looks NOTHING like any place I ever worked. People are engaged and happy. I saw nothing that I found concerning - I looked at 5 places and boy I had some alarms going off. I have popped in unannounced to ask questions or to pick up information. They are contractually obligated to keep him if he runs out of funds and has to go into title 19. But we are fortunate his house will fund this plus his life insurance has a LTC rider. They have 24 hour staff.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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