Suggestions please

oh my I am feeling for you both. It’s hard enough navigating when like us you are in your 70’s my DH was 77 yesterday and we have been navigating this for about 8 years. One observant step at a time loads of love and patience. Thinking of you.

what Joseywales said. Also get the book “The 36 Hour Day” which helped me after my husbands diagnosis. Also there are Tam Cummings videos online you can watch online. Learn all you can and make a plan. Take one day at a time. So sorry about the diagnosis. It’s a terrifying and heartbreaking disease.

My kids knew something was wrong because he had showed symptoms for some time. I have always been very open with them and am not one to sugarcoat things ( just my personality). I am medical and deal with trauma everyday. I told them that I see people die everyday that do not know it is coming. We now know your dad’s diagnosis and know his time is limited . We know the end result so let’s make the most of the time we have. Lots of big hugs, wiping tears, and helping them make as many memories as possible. My DH also kept it quiet from work as we were going through testing, but it is a small office and when I talked to them they knew something was off. I explained I needed the official diagnosis for him to give notice but that I foresaw them needing to replace him in the future. He did drive at his work and worked alone a lot which was an added concern. It is still very hard on my youngest, although he is in college now, but wants to be included on every detail. My kids were jr high/high school when this started, I’m guessing yours might be younger. There is no good answer,it sucks because they are going to lose their dad. I do know mine didn’t want me to hide anything from them. Feel free to message me if I can help or you want to vent

I’m a bit late here, but one thing that helped me was breaking things into very small steps instead of trying to plan everything at once. We made simple routines for mornings and evenings, and it took a lot of pressure off both of us. Has anything gotten easier for you over time, or are there parts of daily life that still feel the hardest right now?

My heart breaks for you. You have gotten excellent advice here. Your top priorities right now are getting your legal affairs in order. See an attorney immediately to get your legal documents in order including a will, DPOA, medical directives. Get signed Hippa forms so that you can speak to your husband’s doctors. Speak to an SSDI attorney and file for SSDI for your husband. The process is not fast. You will have to take over all finances. Get a list of all accounts, account numbers, log in and passwords. Put everything you can on automatic payments. Get log in and passwords for computers and phone. With the diagnosis, most car insurance companies will not cover an accident. Alzheimer’s impacts driving. Call your insurance company and ask if they will cover an accident. If he is driving, take out a two million dollar umbrella policy to protect your assets in the event of an accident. This is what we were advised to do. There are companies that will certify that you can or cannot drive after a three hour test. Put TILE gps trackers on phones, purse, wallets, keys. Discuss a plan B in the event something happens to you, and you can’t care for him. For us, that was touring assisted living and memory care facilities and getting on a wait list. Call your local Council for the Aging and ask what is available including senior day care for Alzheimer’s patients. Keep a notebook with notes from all appointments with your husband. You will need to attend all appointments with him. He won’t remember or fully comprehend what is said. His reasoning is broken now. Keep notes in this notebook of all new symptoms. This will help with doctor visits and tracking the stage he is in to prepare for what is next. Start reading The 36 Hour Day now and start preparing. Safety is number one. We use a whiteboard to write down two important tasks per day or appointments depending on the day. We also use a calendar sold through Mayo Clinic. The HABIT Program through Mayo Clinic was a life changer for us. Start him on Brain HQ online games. It will help build new neurons in the undamaged part of his brain. Find a therapist for yourself. Ask people who will help you one specific thing that you need help with. If there is an Oasis Senior Services near you, they will help for free with touring facilities, in home care, etc. Come back here often. We will help you.