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Just a rambling vent...

Smilinpj
Smilinpj Member Posts: 20
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Mom started a fire in a microwave this morning. That was after Dad missed her walking out the door last night and she showed up in the garage where my husband and I were talking….scared the crap out of me as she can barely walk! Back to this a.m., I thought I smelled something funny this morning when she came out of their room, but she closed the door and I was all about getting her to her seat (severely impaired walking w/walker). So, when Dad got up a half hour later, I went to make their bed and realized she wet the bed again so I was all into changing sheets and mattress pad, etc. In the middle of starting laundry and changing sheets they were ready for coffee - which was when I noticed the light in the microwave wouldn't go off - I opened it and p-u! Melted plastic on the glass (her pad) and black and burnt smell. I look in the trash and there is her white underwear and pad singed black. We are soooo lucky the fire stayed in the microwave!! There are curtains hanging right there! Scared the crap out of me.

So, I told Dad - Things are changing - the microwave is gone and took it. Had to take the coffee pot too, as now they can't heat their coffee which is all they drink. I have a Keurig, so I set that up and when my hubby got home I went out and bought coffee for them. Dad will never remember how to make that coffee. Mom was just glaring at me as I took things out of the room.

Then Dad refused to take his once a week shower - I worked on all their stuff all morning long (didn't get to make the soup for them, or decorate as I wanted). When I finally was done with everything for them I thought great, one moment to go outside and put up some decor and get some fresh air - I need it….and then Dad walks out to take his shower. OK - not going out as mom can't be left alone.

I am rambling. I have cried all day. I need to go for a fast walk. I need to listen to MY music. I need to get away….for a few minutes anyway.

And I know, Take time for yourself, ask for help, be gentle with yourself - but I gotta say, I am so very sad because these just aren't my parents anymore. They would hate what this has become and what it's doing to me. They often said their goal was to make sure not to ever be a burden on anyone. And yet, they need taking care of. to the nth degree. I am just so sad. They would so hate all of this…I hate this for them.

***

OK not done yet. Mom has not been one to wander, but after last night I'm thinking I'll need more help than just baby monitors and cams. I'm going to put a bell on the main door, but really, she has access to 3 doors. I'm going to have to research door alarms. And to me, this turn about is really weird as all the doctors are saying she's approaching a point where she won't be walking at all. How can that be when she appears to wander more and at the weirdest moments?

And back to the fire - they say their ability to reason disappears early, and I will tell you she can hardly utter a word or complete sentence that makes any sense at all, and yet she thought to put her undies in the microwave to dry them!?!?

This disease my compatriots, is not for the faint at heart.

Peace to all tonight….

Comments

  • SusanB-dil
    SusanB-dil Member Posts: 1,201
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    Go ahead and rant. I am so sorry you had to deal with all of that, and all at once! ((Hugs))

    Is adult daycare an option? For one or both? A day or three or four a week? Caregiving for one is challenging enough and you are working getting both folks situated? oh, my…

    A bell on the doors is a good idea, but what about a flip-lock or chain-lock towards the top of the doors? That way you could open in an emergency, but mom probably wouldn't be able to work them.

    and yeah - I HATE 'this' !!! *)&%#(*^!!!!!

  • Emily 123
    Emily 123 Member Posts: 831
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    Maybe a UTI? I know…might just be progression or a random thought process for her, but might not hurt to rule it out just in case. I think my mom’s UTI’s give me a sneak preview of the next upcoming behaviors. I honestly don’t know how you do it…would you consider placing them? Or getting some respite care? It sounds like between the two of them your day’s just a big game of playing Whack-a-mole with their needs. I’m so sorry that your mom’s mad- doesn’t it feel so unjust, and you’re trying so hard?
    I agree- the combinations of remembered things with not quite right actions are so odd. My mom was able to play solitaire on her ipad until this last UTI, now she automatically taps everything in front of her like she’s trying to select an icon on the ipad…book pages, photos, magazines…

  • JM27
    JM27 Member Posts: 145
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    Hi,

    Sorry you are going through this. Amazon has bed alarms. You will have to check but I believe once she gets out of bed it will alert you.

    I’m so sorry you are going through this.

  • H1235
    H1235 Member Posts: 626
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    Just adding on to jm27 , I think you can also get door alarms for the exits.

  • Victoriaredux
    Victoriaredux Member Posts: 130
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    If you haven't researched a Plan b &c [ one parent placed , both parents etc] suggest you do so, just having options will be a mental relief for you whatever you decide.

    Taking care of one person is a 24/7 task- two in a busy house of 7 is a huge task. Smaller board & care home are usually 2-3 staffers for 5-6 people — and they get scheduled time off . And don't have the emotional aspect since the PWD are not family.

    Your profile says :"I am afraid to fail them" - they wouldn't have wanted to cause you and your family to suffer health-wise, financially, career etc- and this disease can go on over a decade ,progressive , unpredictable and ever more physically challenging.

    Getting them safe and keeping you, your marriage and other family members healthy and flourishing would be a win.

  • harshedbuzz
    harshedbuzz Member Posts: 4,574
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    I am so sorry.

    You can get door alarms on the exterior doors, but given your mom's progression discrete locks up high would be a quick fix.

    I hear you on the disconnect between a barely mobile late stage PWD and the occasional sudden transformation into an escape artist. My friend's mom needed a transport chair to get to the car and handrails/assistance at home in late and hospice stage, but in the middle of night, she could escape out the front door and vanish into the dark before my friend could make it down the stairs. It's crazy.

    Friend used motion detector mats on either side of mom's bed for nights and one on the edge of her suite in case friend was in another part of the house during the day. She also alarmed the exterior doors. That might help.

    That said, were I in your shoes, I'd be looking at placement for both in the same facility. It would allow you to oversee care without providing it hands-on. Instead, you could be a daughter and visit and love on them.

    HB

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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