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I’m Not OK But It’s All Gonna Be Alright…

SDianeL
SDianeL Member Posts: 1,144
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edited December 2024 in Caring For a Spouse or Partner

song by Jelly Roll for those struggling and especially those in Stage 8 💜

https://m.youtube.com/watch?v=Qop5XLgwkNc

Comments

  • Karen711
    Karen711 Member Posts: 101
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    Not in stage 8 but I get it!!! Sending you a Holiday Hug!
    Love, Karen

  • charley0419
    charley0419 Member Posts: 394
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    the words are chilling but so true

  • fmb
    fmb Member Posts: 508
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    @SDianeL

    Thank you so much for posting this. I'm having a very rough day today and really needed to hear this. Also forwarded it to my very dear friend who is struggling after losing his wife to covid two years ago.

    ((hugs)) to all who need them today.

  • Iris L.
    Iris L. Member Posts: 4,541
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    Thanks for posting.

  • Jgirl57
    Jgirl57 Member Posts: 542
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    I have seen Jelly Roll a few times on TV specials and have come to enjoy his performances . He truly sings from the heart

  • fmb
    fmb Member Posts: 508
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    https://alzconnected.org/discussion/comment/231728#Comment_231728

    I fervently pray that DH dies in his sleep; that his heart just gives out.

    Yes, adults are orphans. In our relationship with our parents, we are still their children, whether we are 6 or 66. My father died of ALZ in 2019; my mother will probably be dead from ALZ/heart failure within a year. I'm 64, and yes, I will be an orphan.

    Another factor to consider is that you have lost the part of your life that revolved around your mother's care and going to the ALF and the relationships you had with the staff there. I know I am going to miss our hospice team and certain staff members at DH's ALF very much when he dies and I no longer have a reason to go there. I will also have to find things to do to fill up my suddenly empty time. Another level of grief.

  • fmb
    fmb Member Posts: 508
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    https://alzconnected.org/discussion/comment/231735#Comment_231735

    I am so very sorry for your loss.

  • SDianeL
    SDianeL Member Posts: 1,144
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    https://alzconnected.org/discussion/comment/231735#Comment_231735

    so sorry for your loss. Cherish the memories. 💜

  • blacksparky
    blacksparky Member Posts: 31
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    That is such a great song. My DW is still in stage5/6 but there are days I can really use this song.

  • ghphotog
    ghphotog Member Posts: 690
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    Love that song. It does resonate.

  • Carl46
    Carl46 Member Posts: 378
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    I notice they flashed the 988 number at the end of the song.

  • RickM
    RickM Member Posts: 116
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    Yep, but it’s gonna take some time. ❤️

  • mrahope
    mrahope Member Posts: 550
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    Thanks for sharing this. I am comforted by it. I especially love the line, "I know I can't be the only one". So true.

  • Lkrielow99
    Lkrielow99 Member Posts: 65
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    I play this song every time I’m driving. I can’t believe my DH is spiraling down. One side of me says go faster, no one wants to live like this. The other side says he is going faster than I can accept. I visit every day. Yesterday the staff said he poo’d in his pants and went to his room and put on his roommate’s dirty clothes and left his poop pants in roommate’s laundry basket, they showered him again. He crawled up on a counter to rip off the TV. By the time I got there he was seeing blue fish swimming. Not UTI, just nonsense stuff.

  • Biggles
    Biggles Member Posts: 244
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    https://alzconnected.org/discussion/comment/231728#Comment_231728

    Peace and sleep sound so comforting to me. I think that we can definitely feel like an orphan, it's that aloneness when our parents have gone and our partners are going and there's no one close to turn to, it's so sad. This forum and everybody that we get to know on it and the posts are so very important.

  • Russinator
    Russinator Member Posts: 71
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    We're all in this (at different stages) together.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more

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