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How to deal with dangerous “lies”

neenz21
neenz21 Member Posts: 3
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Hi all, new here and first post.
My husband is the primary caregiver for his elderly mom. Her dementia is progressing and as such, so is her misperception and “lying”. We attempt to redirect her when she claims her jewelry and money is missing or has been stolen. However, recently she told another family member that my husband comes at her “with objects” to hurt her. I’m concerned that these false accusations could harm my husband/us and not sure how to deal with it. Is there anything we can do to protect ourselves? I know she doesn’t understand what she’s saying or the impact of those statements but maybe others will believe those stories? Thank you.

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  • harshedbuzz
    harshedbuzz Member Posts: 4,702
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    @neenz21

    Hi and welcome. I am sorry for your reason to be here, but pleased you found this place.

    Does your MIL have dementia included in her medical records? Since paranoia and false beliefs are very common in PWD, if the diagnosis is noted, I wouldn't get overly excited about most accusations. This is very garden-variety stuff.

    Best practices are typically to meet a PWD with dementia in the world in which they inhabit rather than trying to dissuade them of their reality. Validating her feelings of loss and upset would be more calming than trying to convince her she's wrong.

    I understand the impulse to defend yourself and your reputation, but this sort of upset is forgotten more quickly with validation and/or an apology. Trust me. Dad went on a tear about me stealing from him on the regular. We didn't an easy relationship, so the script assigning nefarious behaviors was not new to me and I was very resistant to apologizing for crimes I didn't commit.

    For a long time, dad told all around him that I had stolen (or cost him $360K). Sometimes I stole it from an account while other times I sold his house for less than it was worth. One day when I was recording his abusive and aggressive behavior for his geripsych to prove the need for a dosage increase he got into a real lather. Once I had the footage I needed, I apologized just to prove to the folks here who didn't know dad, that this strategy wouldn't work. I was shocked when he not only accepted the apology and promise not to steal anymore but that he dropped it immediately and was easily redirected to a snack.

    That said, for a time dad told stories about things he'd done that would have resulted in an arrest. I'm certain this was a conflated memory about something a colleague had done. During that time, we kept him home for the most part and only took him to his medical appointments just to avoid an issue. We'd already turned off his phone at this point as he couldn't reliably use it. That may be an option if she's using the phone to badmouth you to friends or relatives who don't know better. This phase did eventually pass for us in the latter part of stage 6.

    Good luck-
    HB

  • Emily 123
    Emily 123 Member Posts: 872
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    edited December 2024

    Hello,

    Some of my family are medical, and so support for me has been great. But I still sent everyone the attached and asked them to read both, because they're a great start to understanding how the disease affects the person, and can help others communicate better with the PWD.

    It's painful to be accused of something that patently isn't true, especially when you're doing your best. Try to hang on to the thought that there's no intent behind it—just scrambled brain connections that can't tie back together meaningfully.

    Hope this helps…

  • neenz21
    neenz21 Member Posts: 3
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    Hi, thanks for sharing your experiences. MIL was officially diagnosed in October so we do have the medical record documentation. Yesterday, MIL accused us of stealing her boots (which don’t exist) and we tried the apology route. She did eventually redirect so that may be a good method for us going forward. We have an appointment this week with her pcp and would like to share these accusations so we have it documented. Since my husband has been her caregiver for many years, I don’t think there’s real concern of the pcp believing false accusations of abuse. Geesh, what a roller coaster. Thank you.

  • neenz21
    neenz21 Member Posts: 3
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    Member

    Hi there. Wow, these documents are really helpful; thanks so much for sharing. To be honest, I was a bit disappointed when we brought my MIL to the dementia clinic in Oct for her initial evaluation and diagnosis. They didn’t share any of this type of information. They asked ahead of time what we were hoping to get from the visit and we said (1) understanding what to expect going forward (2) tips to care for her, how to comfort her when frazzled etc. and we left that visit with basically both of those unanswered. So again, thanks for the helpful information.

  • Emily 123
    Emily 123 Member Posts: 872
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    edited December 2024

    Yes—so many people have family that have dementia, but it's just not on a provider's radar or a focus for family because we do expect some MCI as loved ones age, right? The line between normal aging changes and dementia isn't clear, the person with dementia may be handling their own care and so their new behaviors slip through the cracks, and no-one gets educated about what to look for in loved ones.

    The 'Books' thread by Iris has great suggestions—I listed some links to videos as well—YouTube has great stuff. (And I bet your MIL probably had a great pair of boots that she loved back in the day, and was trying to find them…this disease sucks.)

    https://alzconnected.org/discussion/65171/books-about-alzheimers-disease#latest

  • elh430
    elh430 Member Posts: 4
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    Member

    Hi,

    I am dealing with the same issues. My mom accuses people regularly of stealing. Everything from clothes to money to paper and pencils. She has Christmas decorations and then puts them away if anyone touches them. I do not have any great answers, but I keep excellent notes and try to have someone with me with visit or outings. I document every instacart order every purchase. It has come in very helpful especially when she called the state on me. I provided receipts and documentation of every item and less then 1 hour it was cleared up.

    God Bless.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more