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Feel like I’m becoming reclusive

KathyF1
KathyF1 Member Posts: 120
25 Care Reactions Second Anniversary 10 Comments 5 Insightfuls Reactions
Member

Out of necessity, DH is stage 6. It’s just too hard to do things with him. He won’t tolerate caregivers so it’s mostly all on me except for family helping at times. Won’t go to day care. Just going to the grocery store alone is rare. Taking him out in public is hard because his speech is garbled and he tries to talk to strangers etc. I’m finding I just choose to stay home with him almost all the time. I do on line watercolor lessons. Take a walk when I can. We go take care of our horses every day. But no socializing. None. (Except my mom and sister.) It’s strange to say that I’m getting used to the solitude. It’s hard to imagine interacting with people, I wonder if this is permanently changing me. Does anyone else feel this way?

Comments

  • mrsdee13
    mrsdee13 Member Posts: 5
    First Comment
    Member

    I hope you find the strength to get through this trying time. I hope you find a pathway to LIVE again and be happy.

  • AmmaT
    AmmaT Member Posts: 7
    5 Care Reactions First Comment
    Member

    WOW…….to all of you, thank you for sharing! Your words have validated all of my feelings & what I too am going through with my DH!!!!!! I definitely don’t have any answers or words of wisdom but it is comforting to know that I am not alone…….I pray for us all to have the strength to get through the daily struggles with caring for our loved one with this disease❤️

  • OhDear
    OhDear Member Posts: 34
    25 Care Reactions Second Anniversary 10 Comments 5 Likes
    Member

    I can so relate. TV is out, we listen to music the time. Lately, DH (stage 6) wants nothing to do with me, asking me to leave the house and then suddenly resets and follows me around. People have suggested putting him in MC for respite, but he no longer can tolerate even going out in the car for long. Had to stop going to restaurants, shops (I have everything delivered). We are on the 3rd week with a caregiver which is amazing, the longest he tolerated anyone. Don't know what to do!! He is so fearful of being alone but wants desperately to be independent. Terrible! I thought it would get easier with meds for the agitation but mentally it is so hard. Friends no longer want to talk or visit.

  • jehjeh
    jehjeh Member Posts: 31
    25 Care Reactions 10 Comments 5 Insightfuls Reactions 5 Likes
    Member

    I hate being so reclusive. I had a full life, we both did. I miss my friends, coffee or lunch out. Going for a walk, being alone in my own home. Talking on the phone without constant interruptions. Reading a book, watching TV, anything without constant interruptions. Like some of you, I have tried in home help but he just wants them to do housekeeping with me directing them. What happens if I get sick? I pray I don't.

  • Tetonman
    Tetonman Member Posts: 7
    First Comment 5 Care Reactions
    Member

    So very true. I'm not alone in feeling this way. This Alzheimer's is hard for both of us. Feel like I'm wasting years away

  • Abby627
    Abby627 Member Posts: 4
    First Comment
    Member

    Your post breaks my heart like so many do. I’m in year 3 with my DH and, although things are progressing, we’re doing well. He’s very confused at times and can’t do any of the things he once did but I have no trouble with anything. We get along well, walk daily, he helps with dishes, we watch tv. He showers daily but I have to help him get going. I feel so fortunate right now. Im wondering how long your DH has been batting this and what stage he is in. You mentioned it’s been a decade since you had a social circle. That’s so sad. Our friends have slowly dropped away, too. We can now count our true friends on 1 hand. This is such an awful disease.

  • BPS
    BPS Member Posts: 143
    100 Comments 100 Care Reactions 25 Insightfuls Reactions 25 Likes
    Member

    Most of my friends were work related in one way or another or family. I retired 2 years ago to take care of my wife so I had less in common with a lot of them and they slowly dropped off. My wife was having delusions about some of the family so they stopped coming around to help keep her calm. Then when she had a stoke last year and moved into MC I was left home alone. I was very sad and lonely for a while, but unfortunately I am starting to get used to it. It is unfortunate because I know it is not good for me physically or mentally so I am forcing myself to get out a little and hopefully it will grow to where I have a life with happiness again. I think the desire to want to get out is a sign that you still have a drive for life to live in you, and that is good.

    Stay strong

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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