If you can’t beat ‘em, join ‘em
I was so frustrated and angry today trying to do chores but having to follow DH around and “babysit” etc. I broke all the rules this morning—argued, corrected, over explained, got mad. Got some stuff done then decided that I’d rather give in and relax than ruminate or come on here to complain. About to take a little nap on the couch as he watches soccer and rubs my feet. I guess I’m lucky—we’re both lucky—that we can do this.
There’s only so much you can do in a day and the most important thing is to not stress and do what you can to enjoy life.
Comments
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We're all doing our best and sometimes that means our best is breaking the rules.
Enjoy your nap!
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We are all doing our best and some days are not perfect - because we are human!
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Must be something in the air because we aren't having the best day here either. I needed to order a new refrigerator and clean the pantry and all of that was too overwhelming for DH. Trying to talk to him about the new fridge seemed to overwhelm him, I should have known better, but it was a big decision and I fell back on old habits. He was very grumpy and ended up going upstairs to take a nap. I decided to sit down and eat lunch and check out this forum instead of continuing the cleaning project. Hopefully tomorrow will be a better day for all of us!
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One of the hardest things for me to learn in this whole process was to lower my expectations, both of DH and especially of myself. While DH was at home, especially in his shadowing period, I got very little done. So my house was dirty; it's not like Martha Stewart was going to come visit. So he wanted exactly the same meals every. single. day. He wasn't going to starve to death. Even now, with DH in a facility for over a year, my expectations of myself are still low. If I have food in the refrigerator, clean clothes to wear, the bills are paid, and he is safe and reasonably well taken care of in the facility, I consider that a win.
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I’d enjoy a foot rub and a nap on the couch, well done.
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I come here, too, when I need a sympathetic ear.
Can’t talk to DH about anything! It’s like talking to a toddler. It’s rough b/c we’re so ingrained as spouses. I don’t miss having to discuss and agree upon everything, tho. It seems like negotiating with him for the last twenty years has been a nightmare. He’s only been obviously impaired for 5, but looking back, I wonder. There’s the stubborn, lazy personality buried in there, too!
Anyway, not much of a nap…dog needed to go out so I got up for that. Then I took a short drive with doggie to the PO, back to run the dog around a little in the yard, load the dishwasher & cook dinner. I won’t even bother listing everything else in the background.
Moral of the story: take breaks whenever you can, accept that your time and schedule are not yours so don’t fret about it, squeeze in you time & take it easy!
God bless us!!!
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I agree it's best not to stress and do what you can to enjoy life, at times, that's easier said than done.
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Absolutely easier said than done.
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Yes, it’s all about expectations.
Try to do something for yourself everyday.
For me, it might just be a long shower or a TV show. Planning both for later tonight. The only time I can really focus or relax is for an hour or two while he’s hooked into a game on TV. It feels just like when my kids were little & id settle them with a video while I cooked dinner or stole some time for myself. Last night, I did some chores between 9-11 pm b/c he was in bed & it was the first time I felt I could.
Right now I’m attempting a post-early-dinner evening lie down. To be honest, I can’t face him right now. The questions, the emotional neediness. My battery is dead.
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It is overwhelming. DH is still somewhere shy of middle stage, but I have had to assume all responsibility for everything. He can still manage things for the most part, but then, there are the times when he cannot, so I just do it. He either doesn't want or cannot make purchasing decisions. I'm not sure that all my choices are right and I end up questioning myself. It isn't so much the actual work of running a household…finances, maintence, etc., it is the overwhelming burden of literally, everything being my responsibility that exhausts me.
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Yes, @Maru its a shock! When my DH was at this stage I still did not know he had a disease and I basically hated him for being “selfish & lazy!” On top of having to do everything, there’s the emotional burden.
I’m rooting for you & every other caregiver! We’re in this (virtually) together. I’m learning to be more adaptable and creative with living arrangements and plans. People on here have stressed the need for flexibility and to expect things to change just as you’re settling into a routine. I’m starting to feel that now,
Good luck!
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I feel like my DH slipping down the hole fairly fast, thinking back to this time last year. I remember four years of a very angry and frustrated relationship as he began slipping into probably stage 2. Lack of empathy, angry outbursts that ended with him acting very out of character. I thought it was the drinking, accelerating. When I figured it out and realized he was not all right and got to a neuro for testing, it got a lot calmer. Now I do many things that would have resulted in a big blowout from one of us. I just agree, instead of correcting. I also started traveling with my sister occasionally. He won't go some places, and definitely not to see family. He seems to have gone downhill again lately, stage 3. I'll just have to keep trying to adapt to the new reality.
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When my great aunt was dying, she told my mother: "I have wasted my life cleaning this house. It isn't clean now, and it doesn't matter."
I make sure we are eating well and sleeping warm. I have a housekeeper once a week, so it doesn't get too bad. It is enough.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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