Concerned,not sure where to go from here

kattie5555 · January 13

My mother has dementia and I think it is in her last stage. I was wondering if I could find some information to see where we are at. I know that everyone is different in regards to what symptoms/behaviors they go through to determine what stage they are at, but just starting this week, actually, about 2 days now, she will not get out of bed, screams at me to leave her alone she is sleepy and staying in bed, and this is what she has done for a good 24 hours which means she does not want to eat, drink, etc..Before this behavior, she had been doing good, she gets up a little later but she gets up, eats breakfast, and we get on with our day. But that has now stopped. Does anyone have any suggestions?

towhee · January 13

It is possible that she could have a UTI, constipation, or other illness. These can cause behavior changes. For stages, look under the Group section for one called New Caregiver Help, it should have a link there.

kattie5555 · January 13

https://alzconnected.org/discussion/comment/233786#Comment_233786

Thank you for your help, I truly appreciate it. Somedays get too overwhelming, I just have to keep reminding myself that it is the disease, not her, because my mother is the sweetest person I know! But again thank you for your information. God Bless and Take care. Katherine

cdgbdr · January 13

Agree that she may be ill with something she can't express. You can call her PCP for direction.

mabelgirl · January 14

We found this tool very helpful.

https://static1.squarespace.com/static/6372d16ea4e02c7ce64425b7/t/63f7b80d80d8aa3e3aa4a47d/1677178894184/DBAT.pdf

My mother is late stage and she also for last several months does not want to eat or drink. We are constantly bringing her her favorites to entice her. She’s also taken to staying in her bed. Certainly get her checked if it’s suddenly out of character. She also gets snippy when we try to get her up and moving and says she can do what she wants! Having a prescribed PT plan at least gets her to move some. Prayers for a turn around.

terei · January 15

In these cases, a hospice evaluation is vitally necessary IMO

VictoriaA · January 20

@mabelgirl Super helpful tool. Thanks!

@Kattie5555 Sending warm thoughts to you. I’m also in the process of navigating the drastic personality changes in my Mom. She’s gone from the sweetest person I’ve known to an angry, accusatory, outright nasty person (who now cusses) who I don’t recognize.

She’s really trying to maintain her independence and freedom and resents her new AL and me for “putting her in there” and “stealing her life”, etc.

On the daily, I have to remind myself it’s the disease, and her brain under attack, and not her (or me). But, it’s not easy. I miss my Mom…

Concerned,not sure where to go from here

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