Hi .. I’m new to the Discussion part
I am the caregiver for my husband. He has been diagnosed with likely Vascular Dementia and some Alzheimer’s plaques also. We did participate in a Clinical Trial for Eli Lily’s newest plaque destroying drug til it was discovered that he had more than moderate (not quite to extensive, but close) White Matter Disease. He was eliminated from the trial after one infusion because the risk of stroke was too great.
he has been diagnosed since August of 2023. His most noticeable symptom, loss of the ability to remember and use the words he wanted, became obvious in early 2023. So far this is the only major symptom he displays. He is beginning to need help buttoning his sleeves, hooking his overalls, and putting on jackets. His clothing choice remains appropriate. He can operate a skid steer/loader, well. He can and does drive safely. He does not get lost but he does need me to help him get places that are not familiar in town. He cannot write any longer and doing daily math computations is nearly beyond him. I guess I’d say his muscle memory tasks are still doable but mental computational tasks and fine motor skills are leaving him… his long term memory is sharp and accurate. His short term memory is not good .. He is fixated on asking several times a day if it is the day he thinks it is. He also is obsessed with being on time for appointments to the point where he would arrive an hour to two hours ahead of time. He is profoundly deaf and wears two hearing aids because of years of gun use and heavy equipment use with no ear protection. The deafness is also used as a tool to take time to comprehend conversation directed at him … I see the confusion when we talk … So, that’s where we are …We are 78 yrs old , married 32 years and going into our 3rd year of recognized dementia .. if you just met him you would not realize for quite some time that there was anything amiss with his head …. I just wanted you to know his base. I am glad I finally got the courage to participate.. I need to have a place to learn . Thank you
Comments
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Hi martieS - welcome to 'here', but sorry for the reason.
So sorry you are dealing with 'this'. MIL also has alz and vasc. It is the most common of dementia dualities. That is wonderful you've been married for 32 years. I know it is hard to see a LO in such a state.
But a note, however, that if he does get into any type of accident while driving, insurance may not pay anything because of diagnosis.
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SusanB
thanks for reiterating that… I try to keep a close eye on him and he knows that at some point he will have to give up driving.. we have discussed it several times. Bless his heart, he says he’s going to hate it and he says that he hopes he won’t fight me or that he will know he has to … we’ll just wait and see … in the meantime I go almost everywhere with him …. This is such a delicate line to walk!
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welcome. Sorry you are here due to your husband’s diagnosis. If you haven’t already, read the book “The 36 Hour Day” which really helped me after my husband’s diagnosis. Also get Powers of Attorney done now. I got my husband to stop driving by telling him the doctor said if he were in an accident we could be sued and lose everything even though it wasn’t his fault. This was true. The neurologist said he had visuospatial problems common with dementia and he couldn’t determine speed, space & distance. He was an accident waiting for a place to happen. I was shocked. The next day he gave me his keys and I became his chauffeur. Also take his credit cards. Get one with low limit. There are nightmare stories on this forum about dementia patients buying things or being scammed. There is another group on this forum for caregivers of spouses where you can also post. Come here often for info and support.
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Hi @martieS We are here for you. Sounds like you’re doing all the right things.
Might want to start chauffeuring now (at least sometimes) so he’ll be used to it when the time comes. Act like it’s a one off—can I drive today?
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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