Waiting

ronda b · January 20

Why do I always feel like I'm waiting on something? My DH has VD and alz. Plus multiple other problems copd cad ect. . Now he almost seems normal. I keep waiting for something to happen. WHY? WHY CANT I JUST ENJOY THE PLATUE HE IS ON?. What is wrong with me?

White Crane · January 20

Ronda, I don’t think anything is wrong with you. We know that we’re dealing with a progressive disease. We just don’t know the timeline for it. I hope you’re able to relax a bit and truly enjoy this plateau. While we don’t know the timeline. We know that we’ve gotten this far in the journey. When the next decline does happen reach out for the support that you have on this forum. You will get through this one day at a time. Sending hugs.

midge333 · January 20

I have been feeling that way for the last 10 years.

fmb · January 20

It does seem like we're always waiting for the other shoe to drop, especially if we've been blindsided before. In my case, I am a planner. I'm constantly scanning the horizon for potential problems so I can get out ahead of them and have a solution ready, never mind that the vast majority of these problems never happen. Unfortunately I tend to catastrophize, leading to a high level of anxiety. I've had to learn to consciously stay in the moment and try to enjoy the graces of the good times and even the ordinary, but it's not easy.

Bailey's Mom · January 20

Same here…every time HWD takes a nap I wonder who is going to wake up…the person with delusions or the halfway sane one? I'm on edge all of the time and not comfortable in my own home.

Biggles · January 20

It’s such a strange feeling, what’s happened to the carefree bare foot days? How did I get here? Who am I now? Every day it’s me making all the decisions, it’s like living alone with a shadow but you can’t do anything much really because that shadow, of the person you love, needs so much help. I am constantly trying to find clothes he’s comfortable in, food he likes, music he likes, tv shows he likes. I don’t even know if I’m half way sane if you do you’re lucky. Keep it up ha ha.

trottingalong · January 21

https://alzconnected.org/discussion/comment/234516#Comment_234516

@Biggles. You are such a good writer, I always look forward to reading your posts. You put into writing what I can never really express. What you just wrote really hit me. Where did those carefree bare foot days go? It brought back so many memories, good memories. You should write a book, about anything.

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