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Early Onset of Dementia

Bzdunski
Bzdunski Member Posts: 1 Member
in I Am Living With Younger Onset Alzheimer's

My name is Bonnie and I live near Dillsburg, Pa. I am 57 and was just diagnosed with early onset of Alzheimer’s. I am trying to get treated with Leqembi. I am on a wait list… they said maybe July. I was just reaching out to learn or hear about anything that is helpful for this disease. The more I know, the better prepared I can be.

Comments

  • JustineDavis
    JustineDavis Member Posts: 3
    First Comment
    Member

    Hi Bonnie, my husband is 58 and was diagnosed in August, 2024. Sending you my best and heartfelt wishes that you can get the treatment sooner. We are looking into Leqembi vs. Kisunla here but there are insurance obstacles. Hard when you have commercial insurance where we live outside of DC.

  • khirsch
    khirsch Member Posts: 4
    First Comment
    Member

    I am 53 diagnosed Alzhiemers, waiting on either infusions based on insurance.

    Sending Hugs

    Just wondering are you aware of your deficits, as I am. I feel cheated, so many things I wanted to accomplish and now I am struggling day to day.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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