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Confusion in transition from sleep to awake

I have been searching for information on this site, but cannot find much about this.

My DH is developing a pattern of confusion or ??? During the period of coming awake. The duration varies, from a few minutes to half an hour. During that time, he does unexpected things like needing to empty the dishwasher unclothed, or needing to take all the covers off of me in bed, or using the filter basket of the coffee maker to make his breakfast. He is sometimes aware that he is out of control, but not always. He is often giggly during these episodes.

He appears to be in the middle stage but the way things flip around, I cannot be sure and the neurologist is little help other than reminding me that everyone prigresses differently.

This need I have to understand, or name what is happening, is probably my need t feel some control over an uncontrollable situation.

Does anyone have experience with this or any insight?


thank you.

Comments

  • charley0419
    charley0419 Member Posts: 426
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    Wish I could help but thats a new one for me

  • Goodlife2025
    Goodlife2025 Member Posts: 37
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    Hi I don't post often but my DW is 49 in late stage 4/early stage 5. She often spends the first few minutes to hour upon awaking demonstrating disconcerting behaviors. She also has no idea if it is day or night or any concept of time. It occurs with both naps and after a nights sleep. I have taken to heart what SDianeL has often said. It is not on purpose, their brains are broken and we can't reason with them. We must find the ways to adjust, I try to laugh to myself at some of the more absurd. Redirection and reassurance work well I hope they will for you as well. Regarding the giggling. Sometimes PWD do go back to more childlike behaviors and responses. My DW currently thinks it is funny to spit water at me when we brush our teeth, laughing hysterically. (I need to be there to help her stay in her routine) It's so funny, not. 😂 Hang in there.

  • Bailey's Mom
    Bailey's Mom Member Posts: 152
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    My HWD does the same thing. He will be ok and then take a nap only to wake in seemingly a dream state that lasts about 15 minutes…really bizarre things like he needs to spray the inside of his pants to fight covid…things are coming out of his nose that I need to stop or it will cost of hundreds of thousands of dollars…the flashlight is after him and he'll have to pay a huge ransom if he doesn't destroy it, etc. Usually he is very frightened and gets mad at me because I can't understand what he is saying. It is very disconcerting and every time he goes to sleep I'm in a state of anxiety worrying about what will happen when he wakes up. If anyone knows about this, I'd appreciate any advice…

  • trottingalong
    trottingalong Member Posts: 556
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    mornings are often difficult for my DH. He’s generally just overall confused and can’t figure anything out. Because of his copd he’s not as mobile as others might be. That can actually be a blessing. Usually it takes him a couple of hours to be more of his normal self.

  • Chris20cm
    Chris20cm Member Posts: 13
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    I have concluded, after eight years of 24/7 caregiving for DW of 61 years, that the only thing you can predict with certainty is that they will be unpredictable. There will be new surprises often and we can't make sense of them. Every day is an adventure.

  • SPin-need
    SPin-need Member Posts: 18
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    UPDATE It seems that the morning confusion MAY be a sign of disease progression. It is now happening much more often and occasionally lasting 3 or 4 hours. DH has no memory of what happened when he snaps out of whatever this confusion may be and it scares him. This has happened very quickly.

  • Quilting brings calm
    Quilting brings calm Member Posts: 2,728
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    As mom progressed, even a nap would result in a period of increased confusion upon waking. My son commented that’ every time she wakes up, it’s a brand new new day’.

  • trottingalong
    trottingalong Member Posts: 556
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    it’s happening to my DH more often as well. Almost daily. Mornings are his worst part of the day. Now I’m noticing confusion after a nap. He will even ask me if such and such happened or did he dream it.

  • SPin-need
    SPin-need Member Posts: 18
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    Member

    I have been trying different things and have found that keeping the drapes open and letting the sun stream in seems to reduce the length of confusion time. I was reading about sun downing and trying to reverse advice to morning.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more