Been a long 6 years

I love your photo. My ask (somewhat selfish) is that you keep us updated on your journey. Reading the stories here about people who have traveled the path I am on has been invaluable. You are my people and this is my community.

My DW is at a similar late stage. She is 73 and has been Stage 7f for about four months. This week her MCF and hospice both informed me that she has had a noticeable decline and that probably indicates her time is now quite short. She eats very little and is eating less by the day. She accepts food when you tap her lip with a spoonful, otherwise you would think she was comatose.

As far as a to-do list, I haven’t done much. I have contacted a funeral service. She has a rare dementia (Semantic Dementia) and the University who confirmed her diagnosis indicated they would welcome the opportunity to autopsy her brain (to confirm their ability to properly diagnose this dementia). Semantic Dementia is also not genetically caused (as far as they know) so a confirmation provides my children and grandchildren some relief that they are no more likely to get dementia than any random person.

Other than that I don’t know what else one can do but wait it out. I visit often and feed her. I talk to her but she is completely nonresponsive. Her hands are too contracted for me to hold them, otherwise I would. I advocate for her and seek frequent updates on her condition. If anyone has any other suggestions I would welcome them.

I am not doing any planning for my life “after”. I’ll wait for the grief to subside before moving on.