Sun downing


So this just started for my husband. Pulled two all nighters over the weekend. Around 4pm each day he starts getting very agitated. If I can manage to stay disconnected until 7pm and then distract him with a movie he might settle down, but does not want to get into bed. He packs, paces, usually with boots on and often goes to the garage to start riffling through stuff. If I go to bed he is banging on the door every few minutes. I’m no good without sleep and don’t know how long I can manage. His words are pretty much incoherent.
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I’m curious when was he first diagnosed and from that time when did odd behavior start ???
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Is he on any medication? Seroquel was a life saver for us. It ‘toned down’ behaviors and made it manageable. Hoping you find a solution.
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I suggest you talk to his doctor about an antipsychotic. A very small dose of Zyprexa helped my wife with agitation.
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He was diagnosed three years ago and this started last week
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Currently on 20ml Citalipram
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We have resperidone low dose but much more confused and constantly sleeping
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My DH has recently started with this. It can start early to mid-afternoon. He started Trazodone a couple of weeks ago. I have it in the evening. He sleeps well and it takes the edge off. The sundowning and agitation persists and I am waiting in the Buspirone to arrive and use that for the agitation.
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My DW started with Citalopram. First 10mg then 20mg. It made no difference. Things just got worse. We recently started 25mg seroquel. Not much success their either but we have a follow up with doctor tomorrow. We are going to keep trying adjusting medication because the current level of agitation is unsustainable.
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I just have to rant. My DH who is complete denial and refuses to see a Doctor complains daily, has no friends, blames me for moving to Florida, has no hobbies and resents my weekly piano lessons, accuses me of caring more about the dog, says that I am self centered and only care about myself. I could go on but I think you all get the gist. Today he said he was packing his bags and leaving, I told him to go which shut him up. Thank you for listening. I am really upset today. I am so looking forward to my Monday therapy.
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it seems to be common but with different degrees. Distraction is a good tool but sometimes you get trapped. The best advice given to me lately is to just walk away. The DH usually forgets in a few months minutes. Remember you do not have to put up with abuse of any kind. Mem seem to be worse than women.
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My husband is usually happy and easygoing. I’ve started noticing he will get sometimes get angry and argumentative around 5-7 pm. Then goes back to his cheerful self. Is this the beginning of sundowning?
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Cate2024 My LO suffers from agitation late in the day also. I find that a small amount of CBD helps. It takes 20 min to a half hour to take effect, and then wears off in about 4 hours. It makes my stage 5 or 6 PPA husband able to calm down to a certain extent. Sometimes he's just as bad after it wears off, so I have a next dose ready. I make it worse when I stress, so I just find things I need to do while he is pacing or wadding up the bedding or emptying the refrigerator. Then, the next day when he catches up on his sleep, so do I. The waking from 2 to 4 am is the most painful. Sometimes he just talks in his sleep.
The agitation came along with falls, and in one of them he pulled a groin muscle. Now he cannot stand, so we have had to diaper him, and moved his bed to the living room and may get a hospital bed. This constant changing of the problem is part of what is so painful about this. Good luck to you. I just called a service to send a caregiver a few mornings a week, because my hands and arms are sore from trying to get him dressed and changed. He who weighs a lot more than me.
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Another thought: a sudden change in behavior can be the result of a urinary tract infection. I would ask his PCP to do a urinalysis before I started using an antipsychotic.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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