Just need to vent a little




On June 5th we left my DH's Neurologists office and were told that he has months to live. We werent told an actual amount of months, just months. Today being fathers day I thought maybe I would get some extra help from one or more of our 4 adult children, but basically it was on me the whole day. Im so frustrated I cant see straight. I love my DH and we have been on this Alzheimers journey now 7 1/2 years. I have asked our kids for help, and they say "sure", but when it comes right down to helping I get none. Thanks for letting me vent..I know we are all struggling in one way or another.
Comments
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Hugs.
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Hi Bunny whisperer I hear you loud and clear. Two adult children in their 40’s both very supportive until I actually need real help, tree trimming or a minimal carer sitting so I can shop for essentials (undies etc) and a dental appointment. Suddenly it’s ok Mum but I’m busy today, tomorrow and the next day. So I basically feel a nuisance. Son, daughter in law and 2 lovely grandchildren coming up in two weeks time, staying in other accommodation thank goodness but I’m in a frantic tizz about how he is going to cope with his Dad, what to do with dinners etc (DH can no longer cope with either knives and forks, a spoon or finger food without it all going onto the floor or down the shirt) it’s stress, stress and more stress! I too am already exhausted and have to get myself somehow under control. What a torrid situation we are all in. Take care.
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typically behavior, sad
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@Bunny whisperer
I am sorry you we hurt and disappointed by your children being no-shows on Father's Day. It's frustrating when family doesn't have your back.
This is why I think it is critical for the caregiving parent and adult children to have a frank discussion of expectations. This goes double in a situation where parents move to access help from their grown kids. It's important to define what the parents want in the form of help and what the kids can and will offer.
I have seen this go sideways on this site many times. Some adult children subsume their own lives, moving in to provide lost income and taking on physical caregiving when they're not working. Some are able to offer a regular weekly break to which a caregiver can look forward. Some are willing to mow a lawn or drop off groceries. A few think forwarding random articles or critiquing caregiving is truly helpful. It might be helpful to have a talk about what you need to feel supported and what they can offer.
I can think of any number of reasons why you didn't see them on Father's Day. Perhaps they prioritized their families on the day or a father-in-law who can appreciate the gesture. Many adult children become detached from the PWD in a sort of visceral way as if that which is their parent is already gone; an adult child who feels that way would have been grieving and perhaps not up to a visit.
HB3 -
You take care also. Take some time for you..I know easier said than done ❤
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We have 2 of our children still living at home (oldest and youngest) the only no shows were the 2 middle ones who do have families of their own. A year ago I asked the 2 still living at home for extra help and even put up a white board with their names, days and tasks that they agreed to help with, but still no help. Im not a loud person, but maybe I need to become loud so they will get off their phones or games and do something.
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so sorry you are not getting help. It happens all too frequently. Family and friends abandon the caregiver. We feel so alone. Hugs. If you haven’t already read it, here a link to “The Calvary Isn’t Coming” an essay by Bill on this forum.
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@Bunny whisperer
Your follow up brings significant nuance to the story. How old are these men?
On one hand, adult children who live at home need to be active contributors to the household. On the other hand, depending on their ages, they've not had much of the father-son experience of their peers. The kind of apathy you're describing could be depression.
If they're home, could you just leave and expect them to keep an eye on their dad?
HB0
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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