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New member caregiver needing a support group

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GoldieK
GoldieK Member Posts: 1
Sixth Anniversary
Member

I would like to connect with other spouses whose loved one is in assisted living. I've tried Alz.support groups with all caregivers, but having DH in a facility (just starting year 6) creates some different feelings than when he was home.

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  • BPS
    BPS Member Posts: 265
    250 Care Reactions 100 Insightfuls Reactions 100 Likes 100 Comments
    Member

    I am trying to get some kind of in person group started with the families of residents of the facility my wife is in. So far it is not going very good there is only one other family member that I have been able to meet with and she is a sister-in-law of a resident, so it is different than another spouses. The facility is providing a room to meet in and one of the staff is also working to help get a group started. I agree it is a different feeling. My wife has been in MC for about 15 months.

  • Dio
    Dio Member Posts: 823
    250 Likes 250 Care Reactions 500 Comments Third Anniversary
    Member

    My situation is even more bizarre. My DH has been in mcf for 2 years but is now almost back to normal with the right combo of med, no memory issues except the dark period at the onset of this roller coaster ride. My dilemma is whether I should bring him home. But what if his Mr. Hyde surfaces again? Even his neurologist is confounded by DH's anomaly. Depakote was added to treat DH's combativeness and aggression, but his memory returned including no more urinary incontinence.

  • SDianeL
    SDianeL Member Posts: 1,742
    500 Insightfuls Reactions 500 Likes 1000 Comments 500 Care Reactions
    Member

    Welcome. This is a great forum for you to interact with caregivers whose spouses are in memory care. Feel free to ask any question or just come to vent. We understand how you feel and what you’re going through. I don’t know what I would have done without this group. Read through some of the old posts. You can search for specific words. You can also call the toll free number at the top of the main page to see if they know of any resources. Some teaching hospitals have memory care groups that have support groups if you live near one.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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