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Deepsea
Deepsea Member Posts: 9
First Comment
Member
edited July 7 in Caring Long Distance

My older brother has recently been diagnosed with Alzheimer’s, and I’m trying to understand what to expect and how best to support her. What are some things you wish you had known earlier in your journey caring for a loved one with Alzheimer’s?

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  • ARIL
    ARIL Member Posts: 121
    100 Comments 25 Care Reactions 25 Insightfuls Reactions 25 Likes
    Member

    Sorry about your brother’s diagnosis. You will find useful resources here to help get started learning:

    https://alzconnected.org/discussion/64696/dementia-resources

    Wishing you the best.

  • H1235
    H1235 Member Posts: 983
    250 Likes 500 Comments 100 Insightfuls Reactions 100 Care Reactions
    Member

    I’m going to attach a few link. I don’t know how well the links will work you may need to copy and paste.

    This is a staging tool that is very helpful.
    https://static1.squarespace.com/static/6372d16ea4e02c7ce64425b7/t/63f7b80d80d8aa3e3aa4a47d/1677178894184/DBAT.pdf

    This is a very informative article.


    https://www.smashwords.com/extreader/read/210580/1/understanding-the-dementia-experience#hlangandcommun

    You can also look in groups under new caregivers for resources.

  • Deepsea
    Deepsea Member Posts: 9
    First Comment
    Member
    https://alzconnected.org/discussion/comment/247635#Comment_247635

    Thank you so much for your kind words and support. I really appreciate you sharing these resources….it means a lot during this time. I’ll definitely take a look and start learning more. Thanks again for reaching out.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more

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