Near the end

JDancer · July 11

Lately, my (66yr old, stage 6, early onset) husband has been taking his penis out and peeing on the floor as he's walking to the bathroom. Two different sources have told me they saw this behavior, "near the end." Does anyone have experience with this? If he truly is "near the end," I'll 1)Ask hospice to assess him again. 2) Stop worrying about spending money on caregivers. 3) Alert family/friends.

sandwichone123 · July 11

My dh started doing that several months ago. He's not at the end of life, but I figure he's in his last year. We ordered him clothing from Buck & Buck that they can't pull down independently, which seem to have eliminated the "watering."

JDancer · July 11

Any particular item of clothing that works best?

Jgirl57 · July 12

Buck and Buck has back fastening one piece jumpsuits . The online catalogues are helpful. I understand about wondering about how and when to spend extra money on caregivers. It’s so hard to know how long these awful journeys can be.

sandwichone123 · July 12

Yes, we got the jumpsuits with the zipper in the back. He wears a t-shirt underneath for warmth, and to keep him from feeling exposed when they take it off for a bathroom visit.

SDianeL · July 12

He may not remember where to go to the bathroom. You may need to take him every hour or two. Also does he wear depends? If not you will want to get them to go under the jumpsuit or get adult diapers with tabs that are easier to change.

Quilting brings calm · July 12

’Near the end’ has two meanings. Some people would use the term to indicate the PWD only has a few months to live. Others would use the term to indicate that the PWD is entering the later stages of dementia. Those two meanings are not the same. A PWD can live a long time in the later stages. A member here, Crushed, has a wife who has been in the very late stage for several years now.

You’ve already identified your spouse as being in stage six. I don’t think you’ve identified behaviors or symptoms that mean he has reached the last year of life.

JDancer · July 12

https://alzconnected.org/discussion/comment/247915#Comment_247915

I've been told this new behavoir appeared in others a few months before they passed, so I was wondering if this could be the case with my husband. Wishful thinking, I suppose…

vtech1951 · July 12

We thought "near the end" was 4 years ago….still counting

Cat K · July 13

After reading the comments, I'm hopelessly depressed. I think DH is in stage 6. So this could go on a very long time, many years, as he progresses through the stages of his freaking disease. Many more years of worrying, caregiving, not having a life, feeling stuck and hopeless. I get up each morning and pray that I'll just get through the day. I have no expectations that I'll have a good day or experience joy. This is not a life, this is just existing, for him and me.

SDianeL · July 14

https://alzconnected.org/discussion/comment/247999#Comment_247999

so sorry. We know how you feel. Is there anyone who can help you? Can you get respite help? Have you thought about a memory care facility? Hugs. 💜

Near the end

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