Stage 7a- need to know if possible to keep them home

Babz0226 · August 5

My 78 DH has Aliz and dx 2017 MC, he is progressing has anyone kept their LO home until the end. He is still going to day care 3 days a week ,will be 2 years in Oct. When is Hospice available ? I have been doing everything myself, he has had no showers since Jan but he lets me wash him . Bladder incontinent some BM , sometimes, not always. Have to cut up all meals, sometimes he will have a problem swallowing water, have to crush 2 of his pillls. I put a call in for Hospice evaluation from people that said I should. No shadowing, been there done that. He seems tired and sleeping all night and til 12:00 on the day no Day Care. I think I need some help don't know how long he will continue with Day Care. Married 57 years and big decline the last 6 weeks. What to do????

He is on Seroquel and that has helped a lot. Any feedback would be helpful .

cdgbdr · August 5

Please reach out to hospice for an evaluation if you don't hear soon from them. It is possible to stay at home but you will need help.

Babz0226 · August 5

Thank you- that is what so may people have told me,even the Day Care has told me he is progressing.

Lills · August 5

I was able to keep my DH home until his death. I had 30 hours of CNA help come into our home each week to help bathe, etc. It was my gift to him. Yes, doable! Yes, hard. Yes, worthwhile!

Babz0226 · August 5

Thank-you makes me feel hopeful.

PEMDAS · August 6

I am in the same situation. MY DH is 20 years my senior, and I am struggling physically getting him around, and the incontinence is very difficult to keep him clean and safe. I made a decision this week to initiate the process and submit a request for long-term care. My thoughts are, what am I waiting for? An accident if I drop him? I cannot even leave the room any longer as He tries to get up and forgets he cannot walk. I do not want him hurt, and then the end comes with pain for him. It is a very hard decision, and truly, I will miss him, even though the home is across the street and I plan to visit every day.

SDianeL · August 6

see if his doctor has a Case Manager or Social Worker who can help you get a hospice evaluation soon. You need help asap. Be sure to tell them that he is having difficulty swallowing.

Babz0226 · August 6

Thank-you, waiting to hear.

PlentyQuiet · August 6

Dh is 7a as well and has been on hospice for about a month. He is still walking and talking. Hospice explained that they do not look for no vocalizations but that he is nonsensical when he speaks. That plus double incontinence and weight loss qualified him. The plan is to keep him at home, but we do have a plan B and plan C

Chammer · August 6

We were able to keep MILwAlz home through stage 7 and her death. FIL was w her 24/7 although he wasnt able to provide much in way of care. Otherwise it was a team effort w 20 hrs/wk of paid caregiver support, me and my adolescent and young adult children, and hospice for the final 3 months. It was very hard but a team approach made it do-able.

jfkoc · August 6

Yes, it is possible. It depends upon the amount of care need and the ability to provide that care. I do think that most who die at home require more help than one person can give.

Babz0226 · August 6

Thanks to all for the great information.

Babz0226 · August 8

My DH just was accepted for in home Hospice Care.

Thanks to all

trottingalong · August 8

https://alzconnected.org/discussion/comment/250048#Comment_250048

Thanks for the update. I hope this helps give you much needed relief.

FAHNJL · August 8

Good luck! We’re with you.

Metta · August 8

Wishing you added peace with hospice support now. So many hopeful posts here.

Stage 7a- need to know if possible to keep them home

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