My husband isn’t diagnosed yet


his memory is worse every day. So frustrating with all the repeated questions, plus he cat hear wear and has a cochlear implant, so lots of yelling answers to him. Good thing I have the patience of a saint!
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keep those patience you’ll need them
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Always wanted to meet a saint! 😇) Glad that is you - at least sometimes (ha, ha)
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Write the answer on a notepad or board…raise it when he asks the same question. We finally both laughed when this repeated practice seemed to hit a "waking" moment in him.
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welcome. Repeating questions is very common. Read the book “The 36 Hour Day” which helped me after my husbands diagnosis. Does he have an appointment with a doctor? Meet with an elder care attorney right away to get your legal affairs in order. DPOA etc. We understand what you’re going through. Come back often.
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We met with an attorney prior to his stroke, I have medical and legal power of attorney although it’s not often respected - he’s able to manipulate and charm to get his own way. I’m in denial, shock, and fear not in the same order. Thank you, my financial resources are limited.
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We have a dr appointment, they seem to be dismissive. We’re using the VA, my husband is 100%,
Thank you, yesterday and the holiday weekend was stressful he was agitated most of the time. I was gone about 3-4 hours today fix my phone and he doesn’t appear to have a self calming mechanism, or skills. I made dinner, and he was agitated/abuse so I left called the 800 number for how to de-esculate the viterol (sorry spelling). I was gone about 2.5 more hours. Fell asleep at 6:30 exhausted from the emotional trauma. I was awaken at 8:30 with severe leg cramps - I came down and treated myself. My name is not “F..K B…ch”. The stroke affected his brain not his body. I will see if the college library has the book, again thank you.
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My husband also keeps asking the same questions all the time about order of daily activities. Where is this in the stages of Ahlzheimer?
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I think repetitive questions is a relatively early symptom.
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my husband was 100% disabled and was tested at the VA. He got excellent care there although it did take time. I got Caregiver support, a stipend to care for him and help from a social worker. I got respite home health care once a week for 4 hours. Get that going asap. It takes a few weeks to get approved. You qualify because he can no longer be left alone. My husband went into a VA memory care facility and received excellent care there. Feel free to send me private messages if I can help in any way with VA benefits.
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My husband is also rated 100 percent by the VA. Get paperwork in for Aid and Assistance at home that is covered by the VA. His primary care physician will fill it out.
This will cover in home care for your husband. Request approval for transportation as well. They will provide door to service for any VA or community care appointments for your husband. You are also alloted a lifetime $6,500 to cover any improvements to your home for your husband’s care. The social worker should inform you of everything that is available. Get an appointment with a VA or community care neurologist to get a diagnosis. The VA uses information from the primary care physician and neurologist to determine level of care that is necessary.1 -
Thank you, we have transportation reinbursement. The community care neurologist is swamped so I’m unable to move our appointment up we see them in 2 weeks, can you suggest any language to use so they take my concerns seriously? Thank you so much.
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I would contact a VA patient advocate. They handle issues with lack of care for the veteran. I have had the most luck going this route to get medical care for my husband.
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just write down every one of his behaviors. Keep a running list. Do not show your husband. I sent the updated list monthly to all my DH’s doctors. The VA Neurologist ordered a 4 hour Neuro Psyche test. After they consulted each other that’s when they made the diagnosis. Dementia-Probably Vascular. 18 months later after I sent his behavior list the Neurologist looked at the last brain scan again and changed the diagnosis to Alzheimer’s-Posterior Cortical Atrophy. Google 7 stages of dementia and look for a chart that lists behaviors. The behaviors can overlap stages or not appear until later but it will give you a general idea.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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