My husband isn’t diagnosed yet

keep those patience you’ll need them

Write the answer on a notepad or board…raise it when he asks the same question. We finally both laughed when this repeated practice seemed to hit a "waking" moment in him.

We met with an attorney prior to his stroke, I have medical and legal power of attorney although it’s not often respected - he’s able to manipulate and charm to get his own way. I’m in denial, shock, and fear not in the same order. Thank you, my financial resources are limited.

My husband also keeps asking the same questions all the time about order of daily activities. Where is this in the stages of Ahlzheimer?

my husband was 100% disabled and was tested at the VA. He got excellent care there although it did take time. I got Caregiver support, a stipend to care for him and help from a social worker. I got respite home health care once a week for 4 hours. Get that going asap. It takes a few weeks to get approved. You qualify because he can no longer be left alone. My husband went into a VA memory care facility and received excellent care there. Feel free to send me private messages if I can help in any way with VA benefits.

Thank you, we have transportation reinbursement. The community care neurologist is swamped so I’m unable to move our appointment up we see them in 2 weeks, can you suggest any language to use so they take my concerns seriously? Thank you so much.

I would contact a VA patient advocate. They handle issues with lack of care for the veteran. I have had the most luck going this route to get medical care for my husband.

I’ve spoken to the patient advocate many times. My local VA doesn’t have a neurologist nor a cardiologist so we’re in community care. It’s hit or miss with the psych dept, I paid for an independent 2nd opinion as they kept increasing his anti-depressant which was working and making him worse so we’re slowly tapering down his anti-depressants. We have a neurology appt tomorrow, so the behaviors I need to tell the dr are agitation I) yelling 2) the shaking of his arm 2) yelling 3) paranoia 4) focus on food predominately sweets.

I’ve been in contact with the patient care advocate the one assigned to us has been great, but only so much that they can do within the system. The therapist does “active listening” not CBT as advertised, and I’ve witnessed bullying by staff which my husband said he reported(?). I’m hoping to have transfer his therapy to the vet center which has a primary focus on the Viet Nam veterans. The good days have disappeared, and I’m looking at the good spots in every day vs a “happy day” of getting along and less angry outbursts. I’m still in denial, but working on dealing with reality. He takes medication 4 times a day, the anger makes his BP go up and then it drops so it necessary to take his BP however; yesterday I needed a break and my oldest sat him needlessly to say he didn’t take his 11 am meds until 4 pm with 2 alarms (watch and phone) the VA primary scolded me in front of my husband about taking his BP too often I just can’t complain about everyone! They already see me as a Problem call me names… and the lack of communication is outstanding.