How long can show timing last?



I was purposefully eavesdropping on my DH's phone conversation with his Mom because that's the kind of person I am now. And I was thinking how good he sounded with her. But then I heard him tell her about an argument he had with his sibling that did not really happen. He did this about six months ago before his diagnosis, and now I know it's a confabulation. He sounded great with his mom until about an hour into their conversation. (His Mom does not know about his final CT PET Scan and diagnosis of Alzheimer's.) Does show timing typically have a time duration?
Comments
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showtiming length varies by PWD because of many factors. It will also vary based on how he’s doing that day or even time of day. One thing to watch for is that showtiming is very difficult for the PWD to maintain and they may be anxious, agitated or very tired afterwards. Do you mind sharing why his Mom isn’t aware of his diagnosis?
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I have read that showtiming can continue up to stage 6, although it is probably more limited by then. Other than caretakers most people will not recognize any difference and will chalk up to a wrong word as a slip of the tongue or just old age changes. As the caretaker for DH I see these things as they accumulate along with other subtle changes.
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@Shan456
With my dad, who could showtime like he was gunning for an Oscar, the length of time her could sustain showtiming shortened with the disease progression.
In the middle stages, my folks lived at a distance so my visits meant staying over a couple of days. He hadn't fully developed anosognosia at that point was wary of me recognizing his worsening memory, so I assume he put considerable effort into appearing OK for me. Early on, he could be OKish for a weekend, especially if mom and I gave him down time by going to the beach or shopping. But as he progressed and began to shadow mom more, he couldn't keep it together more than 24 hours.
By the time they moved closer to me and he was seeing me routinely, he stopped showtiming for me entirely but could still keep it together for his brother or a medical appointment for about an hour tops.
HB3 -
Yes, I can share why his Mom doesn't know and am open to advice.
His family is aware of his memory issues. And they are aware that he has been going through doctor appointments and testing.
When he told his mother about his MRI results, he told her he had a brain tumor. That is what he remembered the doctor saying. However, his doctor did not say that. The doctor told us the results on speaker phone. The doctor said he had brain atrophy. When I reminded my husband that he did not have a brain tumor, he did call his mother back and tell her he had brain atrophy. (In hindsight, a brain tumor would have been better news.)
Since then, my husband had a neuropsychological evaluation and then a CT PET Scan and was given a diagnosis of Early Onset Alzheimer's Disease. He has not told his mother about the last two tests.
I don't think he wants to because he has always prided himself on overcoming his childhood poverty and other family dynamics because of her.
I haven't felt it was my place to tell her. And, honestly, she has never treated me well, so I never talk to her on purpose.
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Sadly, your DH’s Alzheimer’s could progress rapidly so very soon you may have no choice but to tell her. He can no longer reason so he may not truly realize he has a progressive disease or know how to tell her he has Alzheimer’s.I called my step-daughter and told her about her Dad. I asked her if she wanted periodic updates. She said yes. I also called our friends and family and told them. I did not tell my husband I did that. I would want to know if my son had Alzheimer’s. I think if I were you I would call your DH’s Mom and tell her and explain that he is confabulating things due to his memory loss. Just my opinion, but I’m not in your shoes.
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@Shan456 already shared that her MIL has never treated her well. It sounds like she doesn't really have a relationship with the woman.
I would guess that sharing the diagnosis with a MIL who doesn't like you would be pointless in the context of his showtiming. MIL will assume DIL is lying or making things sound worse than they are. I'm pretty sure my uncle, the armchair quarterback, thought I was making dad's situation sound more dire than it was and he likes me.
Telling an adult child who could potentially need to step in, as you did with your stepdaughter is a very different situation. You don't want anyone to inherit a parent with dementia without being looped in ahead of time. Even if you don't like that individual, your LO will get better care from a prepared individual.
HB4 -
This phenomena is so amazing to observe from the spouse/caregiver position. My dear wife, gone now for three weeks, was able to do this "showtiming" with the best. I would try to keep family updated on her status because they wanted the information. I had created a Facebook private site for myself and the caregivers to record and share our experiences each day to keep up all updated. I opened that page to very close family because they wanted to know more. However, when some would come by to visit (duration usually 2 hours or less), my dear wife would engage, laugh some, respond a bit, etc. Their reaction was often that she cannot be as bad as reported because she seems okay. I tried to explain what was happening but I am not sure it was ever accepted as accurate. One's own observations trumped the reports they read. Those of us providing full time care for our loved one deal with questioning ourselves at every step with this ever changing disease. There is no simple "cookbook" of actions or steps. We are improvising every day, every hour to handle the changes. When family questions the status of the loved one because their occasional visit experience differs, often quite dramatically, from reported condition, it can cause the caregiver to question if they are misreading the situation themselves. It can cause us to start to question if we have overstated the condition because we are tired and stressed out. I am sure that can happen but, in our case, that was not what was happening. There was consensus among myself and the caregivers who were with her every day. I encouraged family to get on this site, read the posts, learn the facts from those of us living in this world of Alzheimer/Dementia. As noted in other comments, as the disease progresses, the loved one's ability to "showtime" diminishes. That happened with us and the family seemed shocked by the abrupt change. It was not abrupt at all but their comparisons were flawed by the "showtiming" which they discounted. Just stay true to your own assessment, believe in yourself, trust your decisions an try to educate others. If I knew at the start what I know now ,I would try to make signing up for this forum, reading posts and comments and asking questions on here required to interact with us. Books and articles are helpful but talking to those who actually are living in this nightmare with a loved one is the real TRUTH.
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When a person with dementia is in an environment where they are cared for, protected from difficult decisions, complex tasks are made easier by care giver, and the normal worries of life are not on their shoulders, they do better. Mom insisted on sorting through things in her home herself. While at her house she was confused, conflaborated, distracted easily, wanted to do things she was not physically capable of, and made poor decisions. In a safer environment most of these symptoms were not noticeable at all. We protect our loved ones in so many little ways I thinks it’s easy to forget how much scaffolding we really provide. Then add the showtiming on to that and outsiders really have no idea what is happening.
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I think that is a very accurate description. Many people who we see only on occasion for short periods are entirely unaware that my DW has any problem at all. Yet her memory of the last 24 hrs and the last 10 years is almost non existent.
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I have been keeping DH mom informed of what is happening. If it was my son I would want someone to tell me. I keep both of our adult sons updated also. I also understand an unfavorable family dynamic.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
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VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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