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Deepsea
Deepsea Member Posts: 15
10 Comments 5 Likes
Member
edited July 7 in Caring Long Distance

My older brother has recently been diagnosed with Alzheimer’s, and I’m trying to understand what to expect and how best to support her. What are some things you wish you had known earlier in your journey caring for a loved one with Alzheimer’s?

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  • ARIL
    ARIL Member Posts: 216
    100 Likes 100 Comments 25 Care Reactions 25 Insightfuls Reactions
    Member

    Sorry about your brother’s diagnosis. You will find useful resources here to help get started learning:

    Wishing you the best.

  • H1235
    H1235 Member Posts: 1,243
    1000 Comments 250 Care Reactions 250 Insightfuls Reactions 250 Likes
    Member

    I’m going to attach a few link. I don’t know how well the links will work you may need to copy and paste.

    This is a staging tool that is very helpful.
    https://static1.squarespace.com/static/6372d16ea4e02c7ce64425b7/t/63f7b80d80d8aa3e3aa4a47d/1677178894184/DBAT.pdf

    This is a very informative article.


    https://www.smashwords.com/extreader/read/210580/1/understanding-the-dementia-experience#hlangandcommun

    You can also look in groups under new caregivers for resources.

  • Deepsea
    Deepsea Member Posts: 15
    10 Comments 5 Likes
    Member

    Thank you so much for your kind words and support. I really appreciate you sharing these resources….it means a lot during this time. I’ll definitely take a look and start learning more. Thanks again for reaching out.

  • dipeshvora
    dipeshvora Member Posts: 4
    First Comment
    Member

    My uncle has dementia, and what I wish I'd known sooner is how much the disease impacts the caregiver, too.

    For his wife, the biggest stressor will be the "hidden work"of the constant vigilance, repeating information, and managing the emotional fallout that others don't see. Your support needs to focus on her as much as him. Offer her regular "time outs" or respite care, even if it's just a couple of hours so she can leave the house alone. When you visit, don't just ask, "How can I help?" but say, "I'm going to do the laundry and grocery run now," or "I'll sit with him so you can take a nap." As an added layer of security, look into wearable devices like the Medical Guardian MG Mini or mySeniorCareHub's SmartLink Smartwatch. These can offer GPS tracking and emergency help features, which can be invaluable peace of mind, especially regarding wandering.

    For your brother, I wish I had learned sooner that logic doesn't work. Trying to correct them or argue over reality only causes distress. Embrace "therapeutic fibbing" or redirection; validating his feeling, even if his reality is wrong, is far more important than correcting a memory lapse. Also, set up routines and simple environments as soon as possible. As the disease progresses, familiarity is his safety net. Finally, start gathering legal and financial documents now while he still has the capacity to make his wishes known. Good luck to your family.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more