Couldn’t Find the Toilet

Biggles · October 14

I’m thankful that I have had two nights of sleep and could cope with this. In the middle of the night it instantly reminded me of an old joke “he thought it was the WC but it was the cupboard” I didn’t hear my darling DH get up to go to the WC but I woke when I heard the tinkling and he was urinating into our puppy’s basket straight onto our puppy who thought it was great fun. Oh my goodness. It was 2am I quietly guided my DH to the bathroom to finish off this was to no avail he had already finished. A thick towel down for the dog, back to bed for us. Sleep being my priority. Wow back up at 6 to quite an unpleasant smell. Dog bed and basket outside under the hose, more puppy games, out with the steamer, disinfectant and some nice smelling floor cleaner to finish off. Under the shower for all three of us, puppy loving the attention, soiled clothes towels etc into the washing machine and it’s just gone 8 o’clock. Breakfast next except DH is sound asleep on the couch and so another day starts.

RetiredTeacher · October 14

I am so sorry for that awful night you experienced. My husband is not to this stage yet and I dread what lies ahead. We feel for you and to understand how difficult this disease on all those affected by it. Hugs

cdgbdr · October 14

So sorry you had to deal with this. Hugs to you.

tonyac2 · October 15

I almost hate saying this, and don’t always agree with it. But, I think it’s a blessing sometimes that my DH is wheelchair bound. Isn’t that awful? But on the other hand - no falls, no wandering outside, I always know where he is, no getting out of bed, etc. He’s in bed until I get him out of bed. There are many more disadvantages. We can only travel for an hour or two because he can’t use just any restroom. It has to be home where I move him from wheelchair to commode with the lift. No one has a wheelchair accessible home, so visits are out. It takes a lot of physical energy to get him into the van and up and down the ramp by the front door. There are things I’m happy not to have to deal with, but things I wish we could do if he were mobile. It’s a toss up.

annie51 · October 15

So sorry for your bad night! You just never know what will pop up to add to your list of things to be sad, frustrated, or stressed about. I can just picture a puppy having a good time with that, oblivious to the bad side of getting urinated on!
I feel your pain. I’m up at 1 am (haven’t slept yet anyway) with DH having sopping wet pull-ups that he won’t take off or let me help with. Found him sitting in the back seat of my car - luckily I had some protective pads on it. It just never ends

howhale · October 15

Days, nights, what are they? As my dear wife's condition advanced and her sleep/awake patterns changed, I lost track of days and nights since I was awake at all hours. It is so demanding to provide loving care and your grace in accepting your DH condition and "rolling with the punches" speaks loudly of your love for him. Finding ways to try, often failing, to manage for survival their changing condition is challenging. As my energy began to slip, I finally brought in caregivers a few hours a day to allow me to just nap or have quiet time to recharge. The tone of your post reflects your love for DH and I wish I had been as calm in the battle.

Biggles · October 15

Thank you for all these comments especially howhale you really have lifted my spirits. I often don’t know when to laugh or cry, the latter usually wins but if there is no emotion then I find it all so very depressing. Another night to get through tonight and I have a carer starting for the first time tomorrow for two hours. I hope I don’t get too much pushback from DH I think I’m ready for this. Two hours goodness.

Biggles · October 15

Bailey's Mom · October 15

What an exhausting night for you…I know there's nothing to laugh about here, but your little dog 'Milo' enjoying being 'tinkled' on made me chuckle. Hope your 2 hr caretaker break works out ok…you need it.😊

tboard · October 15

https://alzconnected.org/discussion/74350/couldn-t-find-the-toilet

One morning when I went into the dining room there was a pile of poop on the floor. Poop happens. I occasionally find puddles of pee. So far I have slept through the pooping and peeing. I have hardwood floors. I had area rugs. A beautiful Persian rug in the living room. with the help of my son we rolled them up, wrapped them up and put them on racks in the basement.

Adkins63 · October 15

Biggles, I am new here and just read your comment. I can relate to your night. I have had several of those with my DH. I ordered a bed alarm so if he gets up in the middle of the night I am right there. That has helped me from having nights like this. My DH has gone in the shower, on my bedroom carpet, and in the corner in the bathroom. I also have an issue trying to keep my DH awake during the day. All he wants to do is sleep. According to his doctor this is normal the further along they get.

M5M · October 16

https://alzconnected.org/discussion/comment/256108#Comment_256108

It's good you are able to value both the pro and the con. Take the benefits where you can!

Biggles · October 16

https://alzconnected.org/discussion/comment/256136#Comment_256136

So glad you got a laugh. I did too what was done was done nothing could change that, thank goodness Milo helped to lighten the situation.

Biggles · October 16

PS Thank you for asking. The caregiver worked well I was very stressed before she came but I mapped everything out in my head beforehand. She followed us down to the sailing I handed over responsibility of my DH to her said take him home when he’s had enough. They had a coffee and doughnuts then I watched from the jetty as they left. I had about one hour without any responsibility of caregiving. Played boats and talked it was so good. DH was happy when I got home so will give it another go next week. For example gets crossed.

howhale · October 17

So glad the caregiver experience went well for your DH and your self. I worried about bringing someone in to help me as well but found my dear wife enjoyed having another person to interact with. In our case I used women caregivers who had experience with persons with AD and were able to adapt to the ever changing situation. They became my dear wife's new friends which enhanced her life and helped save mine. Our assistance grew from just a couple hours to more as her condition progressed and being able to maintain the same ladies really helped.

Couldn’t Find the Toilet

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