Feeling so Sad
Hi there - DH was diagnosed with MCI due to AD in July. He's 66; I'm 58. I posted last month and many of your responses to me were so helpful. I'm meeting with a counselor for my newfound anxiety. I'm anxious about his/our future. Although he's doing so well and he's in the early stages, daily I'm witnessing his forgetfulness. I feel so sad for him. I know he's embarrassed, said he feels stupid; he's scared about the future. It's so hard to witness and I find myself not talking, not sharing events in my day because I know I will have to repeat myself. This whole thing really stinks!! He attended an online support group yesterday and said it was helpful to talk with others who have dementia. He realized it's not a death sentence. I'm just venting and I do appreciate you allowing me to. thank you!
Comments
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I’m so sorry that you are in this predicament. I remember being right where you are at back in March of 2023. I continued to tell my DW everything that I did or we did throughout the days even though I had to repeat it often. Heck I still catch myself talking to her today like there is no disease. I usually catch myself half way through. I have received the best advice on this site. One thing if you haven’t already done so is to get all your legal stuff done now while your DH can still participate in the decisions. DPOA for financial and medical. Research every book and article you can. In a way it makes this awful roller coaster you’re on easier to handle when you know what to expect before it comes. Use this forum to help you with your LO. Just by being here I know you will do the best job to care for him. ❤️
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I am sorry you are here with us. My husband is early stage. When we received the diagnosis, I was where you are now. The depression and anxiety of what was to come ripped me apart. This site has been a lifesaver for me along with a private therapist. Read The 36 Hour Day. It will help you prepare for the future. Get your legal affairs in order immediately. We are living each day to its fullest while we still have this time. We planned vacations, day trips, time with friends and family. Don’t waste this precious time to build memories and enjoy the time before the tables turn on this disease.
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thank you so much! your positive words are so helpful!
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thanks so much Michele for your support. Appreciate this feeling of not being alone!
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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