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New to the discussion and terrified

My DH was diagnosed in March 2024 with mild cognitive impairment. We looked at the diagnosis with horror and a gift that we could try and slow the progression. Two weeks ago he had a sudden incident of bizarre walking and falling. He said he felt like he had no control of his movements. We saw our family doctor had an MRI & no changes but they didn’t have original films to compare (he also has an enlarged ventricle that they feel he has had for years). His cognitive status seemed as usual, but over the last week has deteriorated significantly. He’s constantly folding and unfolding things and restless. He has no short term recall. Our follow up annual visit to Mayo is delayed and we are trying to see someone here at the University of Nebraska Medical Center. Is this rapid decline “normal?” Should I take him in again to be seen? I also now have to monitor all medications and ensure he eats. I am so scared. He’s 66.
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  • Maru
    Maru Member Posts: 208
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    I could be wrong, but from following this group for 2 years and with everything that I've read, I would say this is not rapid decline. I would be looking for other causes and yes, i would have him seen.

  • LearningCurve
    LearningCurve Member Posts: 43
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    Mary, I seriously have much yet to learn. As has been recommended by so many here, the book : The 36 Hour Day has been a big help.

  • CindyBum
    CindyBum Member Posts: 546
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    They say rapid changes can be a UTI.

  • trottingalong
    trottingalong Member Posts: 804
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    I would rule out a UTI first.

  • SDianeL
    SDianeL Member Posts: 2,385
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    what medications is he on? Is he doing the infusions for EO?

  • SDianeL
    SDianeL Member Posts: 2,385
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    Apraxia is a neurological disorder that affects the ability to plan and execute motor movements. It is a common symptom in various types of dementia, including Alzheimer's disease, vascular dementia, and frontotemporal dementia.  But you should have him checked for other causes.

  • harshedbuzz
    harshedbuzz Member Posts: 5,869
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    In addition to the possibility of a UTI (or other infection) causing a sudden change in abilities/behavior, this kind of sudden decline is sometimes seen in those who have vascular dementia. Did his imaging show any evidence of VD?

    HB

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more