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  • jen ht
    jen ht Member Posts: 122
    100 Comments 25 Likes 25 Care Reactions 5 Insightfuls Reactions
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    Hello,

    I am so glad you've messaged and reached out. We often say here that we're sorry for the reason, but so glad you are here and have found this wonderful group of people who "get it". I agree with you that other do not understand even remotely the pressure, the grief, the exhaustion, etc. if they haven't walked this path themselves. Here - is different. Here - we do get it.

    I called the 800 helpline number (on this page - below) a couple of times when I was really struggling to find my next steps or to even process my thinking. It really helped me. I also use the search option as various words come to my mind and I read, read, read to learn from others here. I'm not sure any of those will resonate with you.

    Can you get some minutes to yourself for a walk near trees/in a park or near water? That helps me reset too. I know sometimes it's not possible, though.

    Others will be along to share their insights too.

    May we be well 💜

    jht

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  • SDianeL
    SDianeL Member Posts: 2,640
    2500 Comments 1,000 Care Reactions 1,000 Likes 500 Insightfuls Reactions
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    welcome. Sorry about your Mom. As I learned here, you can’t reason with someone whose reasoner is broken. And never argue with someone with dementia. Your Mom’s short term memory is gone so trying to get her to do something won’t work. Many PWDs crave sugary snacks. They don’t understand they are not healthy. Hide the sugary snacks and put healthy snacks where she can easily find them. Read the book “The 36 Hour Day” which will help you help her. Search online for dementia caregiving videos by Tam Cummings and Teepa Snow. Your Mom has agonosia which is the inability to understand you have an illness like dementia. She believes she’s OK. I doubt her behaviors are grief related. Search online for a chart that lists behaviors for the 7 stages of dementia. That will give you a general idea of what stage she’s in. I would ask her doctor for anti anxiety meds for her anxiety and agitation. A Geriatric Psychiatrist is the best type of doctor to manage meds for those with dementia. Come here often for info and support. We understand what you are going through. 💜

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Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more