Have any questions about how to use the community? Check out the Help Discussion.

Exhausted and Bewildered

It is 522 AM and I have been up since 1AM trying to deal with my DW. She woke up claiming some men were raping her. I tried to calm her and tell her I was here with her. She when accused me of watching this all happen and that I did mothing. I tried denying all this , tried to assure her this was not happening and that I loved her and I would not do such a thing. This only led her into more anger, and she said I was not her husband. At that point I left the room to let her calm down.

I went back to her about 15 min later and she asked me if I could prepare her some food which I responded yes. Now all is OK for now with a period of lucidity. I am back to being her loving husband.

This is a crazy existence! All these ups and downs with mood swings and odd behaviors. Like I am living in an elevator that strains my sanity.

Thanks for listening….. had to let it out. We have another Dr appt this week to address our issues and perhaps explore possible solutions.

Comments

  • WIGO23
    WIGO23 Member Posts: 239
    250 Likes 250 Care Reactions 100 Comments Second Anniversary
    Member

    What an awful experience for you both! The sadness of this challenging behavior must be enormous. I hope the doctor has something to offer to quiet the delusions. The right pharmacology is sometimes all we can hope for to help our LO (and us caregivers) cope with this cruel disease.

  • CindiEC
    CindiEC Member Posts: 35
    25 Care Reactions 10 Comments First Anniversary 5 Insightfuls Reactions
    Member

    I’m sorry you had this happen. We know our LO can’t help what they say to us but it is so hard not to take it personally and be hurt.
    This disease is so cruel. I hope the rest of your day is more peaceful.

  • Dio
    Dio Member Posts: 886
    250 Likes 250 Care Reactions 500 Comments Third Anniversary
    Member

    OMG, so sorry this happened to you. This is a relentless and merciless disease. There are times you just have to ignore, ignore, ignore, to stay sane. Glad the hallucination was over quickly and she forgot the whole damn thing.

  • JulietteBee
    JulietteBee Member Posts: 347
    100 Insightfuls Reactions 100 Care Reactions 100 Likes 100 Comments
    Member

    What an absolutely distressing event she had to have experienced. That she then accused you of being a spectator is heart-wrenching. I pray you both will have a better night tonight.🙏🏽

  • sandwichone123
    sandwichone123 Member Posts: 1,115
    1000 Comments 250 Insightfuls Reactions 250 Likes Fourth Anniversary
    Member

    I don't know if this is what has happened, but many times when pwd see a news item or TV show they will think those things are happening to them. You may want to restrict TV access to only happy, calm shows and see if that helps.

  • persevere
    persevere Member Posts: 91
    100 Care Reactions 25 Insightfuls Reactions 25 Likes 10 Comments
    Member

    Might want to talk to Dr about risperdone. When my wife started down this path that’s what we used. It was good for a couple years then had to get her off. It will help her sleep too.

  • Victoriaredux
    Victoriaredux Member Posts: 74
    100 Likes 100 Insightfuls Reactions 100 Comments 25 Care Reactions
    Member
    edited November 12

    Yes, like mentioned by above- consider nature shows and having a discussion about meds with her doctor. That will benefit both of you .

    When you've got time this is a good , brief, Teepa Snow video on how to deal with hallucinations.

    https://www.tiktok.com/@teepasnow /video/7039411702735310126?lang=en

  • Vitruvius
    Vitruvius Member Posts: 443
    Fifth Anniversary 250 Care Reactions 100 Insightfuls Reactions 100 Likes
    Member

    I also recommend limiting tv viewing to pleasant shows like nature documentaries. Shows should have little or no plot that needs following to reduce any frustration in not understanding what’s going on.

  • Cate2024
    Cate2024 Member Posts: 25
    100 Care Reactions 10 Comments 5 Likes First Anniversary
    Member

    For the past 15 months my DH believes his wife (me) watched as men drugged him and tried to kill him. For the past 15 months he believes that I (his wife) have been hired as his caregiver and his wife has never returned. He shows me pictures of her and is still angry and hurt that she could leave him. Known as Capgras Syndrome, I am the only person he doesn't know, after 24 years of marriage. So I understand what you are going through.

  • WIGO23
    WIGO23 Member Posts: 239
    250 Likes 250 Care Reactions 100 Comments Second Anniversary
    Member

    This is one of the most awful things I have heard to have to deal with. I am so very sorry this happened. I can only offer my caring concern.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more