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Moved exes in together

Janine25
Janine25 Member Posts: 5
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My 87y FIL, Alan, has mild dementia and has just gotten a pacemaker .
86y MIL, Sue, has Alzheimers...diagnosed 3 yrs ago.

They are divorced (50+ yrs) but friends.
Sue lived independently until 6 months ago, then moved in with her brother, 6 hours away. She's miserable and misses her family...and we miss her.

Alan lived independently until a month ago.
Their son, Mike, and I as well as their daughter, Lisa (Lisa lives in another state) decided the best way to care for them would be to move them in together.

We moved Alan in to a house across the street from us and Sue will be moving in next weekend. This way they are close enough for us to help them and keep an eye on them better.

We are really hoping this isn't going to backfire and make everything worse.

Admittedly, we all have not done much learning...maybe in denial??
I am now diving in deep to help us all learn quickly. I've signed up for programs and also going to start a family newsletter email to help the whole family learn and understand what to do and expect.
Please any tips and suggestions on things we can do. I am very concerned for Mike, who is still in denial on how bad things will get, especially with his Mom.

Comments

  • Quilting brings calm
    Quilting brings calm Member Posts: 3,098
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    edited December 2025

    It might work very well or it might not. I think it’s good to at least try it. As you said, it makes it easier for your family to care for them. That’s very important to your family’s emotional, physical and financial well being. If it doesn’t work, or if one becomes too much to care for, then you can pursue alternate arrangements a that time.

    Please make sure each has their private space to retreat to if they do get on each others nerves.

    Please read various posts in the general caregiver, spouse and caring for parent’s forums. There is valuable information in all of them. You will see many of us posting or replying in all of them. There also information for new members in the group section.

  • H1235
    H1235 Member Posts: 1,684
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    Welcome. This sounds like a good idea, but there are some things that may cause problems. Learning new things/surroundings can be difficult for a person with dementia. This new environment might cause some added confusion. You didn’t say what stage they were in, but most are diagnosed about stage 4. By stage 5 they should have 24/7 care. My point is this might be a lot of work to set up to only have it work for a short time. Even if they are able to to care for themselves in a basic way, many with dementia have anosognosia. This means they are not able to recognize their symptoms or limitations. They may decide to go for a walk, stand on a chair to change a light bulb, mow the lawn, or bake bread even though these thing may not be safe for them. In addition many also lack good judgment. This is one of the main reasons mom couldn’t live alone, because I just couldn’t trust her to be safe. I have heard that some people disconnect the stove, but that’s only one of many ways there could be problems. We used cameras around the house for a while. I think the most important things is will they know what to do if there is a fire? Another concern is the two of them being together. People with dementia often lack empathy and teaching Alan the best way to interact with Sue is probably not going to work. The number one rule with dementia is never try to reason with them. Their reasoner is broken. This is hard for anyone, let alone someone else with dementia. My uncle (86) doesn’t have dementia, but he really doesn’t understand my moms deficits. Trying to get them to be patient and understanding with each other might be a loosing battle. Everyone with dementia is different, so a lot will just depend on how they progress. My mil became laid back and easy going (oblivious to things), my mom has become demanding, angry and opinionated. Do you have the legal side of things in order? Each of them should have an appointed DPOA. It’s best if the DPOA is near by and contributing to care needs. A DPOA out of state and not involved in care could cause problems. I have attached some resources. The more you can learn about dementia the better. Notice on the staging tool it gives a rough age equivalence for each stage. I would use that to help guide you on their safety. I found there were so many things that I just assumed mom could do. I took her to the dentist every 6 months and she got a new tooth brush. I assumed she was tossing the old one and replacing it each time(not true). Mom did her own laundry in the beginning , but I noticed she ran the washer twice without even putting clothes in. Food in the refrigerator needs to be checked regularly.

  • Janine25
    Janine25 Member Posts: 5
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    thank you so much. You're right we have to try.

    I think I will be on this site ALOT! So much great advice and resources.

  • Janine25
    Janine25 Member Posts: 5
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    Thank you so much for all the info.
    I am learning new words and terms that I wish I didnt have to. I am so glad this site is available and it's so sad it has to be. You've given me a lot to think about and do more research on…thank you. I am determined to give them as much happiness as possible while they can enjoy it.

  • SDianeL
    SDianeL Member Posts: 3,122
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    Some resources: the book “The 36 Hour Day” should be read by you and any family member who wants to understand. Also search online for dementia caregiving videos by Teepa Snow and Tam Cummings. My concern is that she will need 24/7 care not just keeping an eye on her. He is not going to be able to watch or care for her. Someone needs to live with them in the same house. She could start a fire and not know what to do. Or many Alzheimer’s patients wander. You never know when that could happen. That’s why memory care facilities are locked. She could leave at night and be in danger. The other concern is that Alzheimer’s and dementia patients exhibit anxiety, agitation, delusions, hallucinations and confabulation. They can become violent. If so, she will need anti-psychotic medication. The best type of doctor to manage those meds is a Geriatric Psychiatrist. There may be a wait to get in to see one. Please keep us posted.

  • Janine25
    Janine25 Member Posts: 5
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    Thank you. I will get that book (I've seen it recommended a lot )and look up Teepa Snow and Tam Cummings. I am putting those names in my notes right now.

    Sue hasn't gotten that far into her dementia yet but we know it's coming. I'm trying to help the family to understand what is coming, in the near future, with her.

    Alan is pretty mild in his dementia as of right now. He mostly just forgets if he said something already. He is still very mobile and mostly has his faculties. We know this will get worse as well. Thanks again.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more