Recently diagnosed

sue783 im 2& something years into the alzy road. yes it is challenging but it can be a slow road so time will let you learn and adjust. its a new you so you need to get to know yourself ,watch, take notes, read of others journey there are some great fist hand books of the journey. its a new adventure it doesn't change all the things you like to do it just requires greater self awareness. you will be fine did i mention im 71 as well

My standard reply is that preparing an advanced directive and talking with a lawyer are nice things to do, but now that there are FDA-approved treatments which showed they slowed the progression of AD in clinical trials, perhaps these steps are no longer the first things people should consider when diagnosed with AD.

Take my case as an example. Upon learning of my AD diagnosis, I researched the treatment options. This included visiting the Alzheimer's Association website (see the link below). This page has info about Leqembi and Kisunla, the two FDA-approved drugs which remove amyloid and slowed cognitive decline in their respective clinical trials. At the time I was diagnosed, Leqembi was the only option available. I started on Leqembi, I recently had my 39th infusion. I have had no reactions to the medication nor to the infusions, but some do have reactions, including brain bleeding / swelling (but in most cases where this occured, the problems went away after people stopped treatment).

I did eventually update my will & advanced directive, but again, these were not my first steps. The two FDA-approved anti-amyloid medications work best when they are started early in the progression of the disease. So delaying starting treatment and instead focusing on updating legal / medical paperwork may not be the best strategy for starting you strategy of dealing with AD in this new era with anti-amyloid medications available as a treatment option.