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Kisunla infusions- treatment side effects

EmDes
EmDes Member Posts: 5
First Comment
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in Caring for a Parent
Hello, My dad is about to start his Kisunla infusions. I am hoping to hear from people whose loved ones or they themselves have experienced some of the infusions what the possible side effects have been. I am familiar with the listed side effects, but would like to hear from individuals who have experienced the infusions personally or witnessed/cared for someone after the infusions. Thank you so much.
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  • Merla
    Merla Member Posts: 190
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    what stage of dementia is your dad in?

  • EmDes
    EmDes Member Posts: 5
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    https://alzconnected.org/discussion/comment/261775#Comment_261775

    He is early stages with minor cognitive impairment. He is almost 74 yrs old. Has a family history of Alzheimers (mother- early onset, sister early onset, and two uncles- late onset, in their late 80s).

  • Merla
    Merla Member Posts: 190
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    I've heard good things about Kisunla but haven't heard about the details. Of the side effects. I'm glad your dad is getting early treatment. So often people are resistant to a diagnosis and treatment in the early stages when there might have been more treatment options available to them. Best of luck. 🤞

  • SDianeL
    SDianeL Member Posts: 3,193
    1,500 Likes 1,000 Insightfuls Reactions 2500 Comments 1,000 Care Reactions
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    welcome. FYI: You can search the entire online forum for Kisunla and read all the posts. The search thingy is at the top of the page.

  • EmDes
    EmDes Member Posts: 5
    First Comment
    Member
    https://alzconnected.org/discussion/comment/261794#Comment_261794

    thank you so much. Yes, I feel especially grateful for his engagement and willingness to learn and seek treatment. Thank you again.

  • EmDes
    EmDes Member Posts: 5
    First Comment
    Member

    Thank you. I didn't see much in the chats on Kisunla, just the other infusion medication. Thank you so much,

  • JJ401
    JJ401 Member Posts: 399
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    DH here just finished infusion #12 with no side effects. Since he is somewhat claustrophobic, the hardest part for him was the required MRI scans. He took some anxiety meds before the exam and did fine. The infusions only take about a half hour.

    Next up is a PET scan to see if they made a difference.

  • EmDes
    EmDes Member Posts: 5
    First Comment
    Member
    https://alzconnected.org/discussion/comment/262027#Comment_262027

    Hello, Thank you so much for your response. I am glad to hear your DH didn't experience any side effects. Have you or he noticed any cognitive changes since starting (as in continued progression of cognitive challenges)?

    Thank you and wishing you the best

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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