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Forgetting a loved one has passed

tamnca
tamnca Member Posts: 3
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What do you tell a person with dementia when they don’t remember their spouse has passed away? How do you deal with them feeling like the death just happened even though it has been years?

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  • H1235
    H1235 Member Posts: 1,523
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    Welcome. In my opinion you don’t correct them or tell them the loved one has passed. If their memory is bad you may find this to be a reoccurring conversation. Telling someone their spouse has passed over and over is just cruel. I know it feels wrong to lie, but if it saves your loved one from suffering the loss of their loved one over and over it’s worth it. If you look up the term therapeutic fib I’m sure you will find a better explanation. So sorry you are going through this.


    https://iona.org/therapeutic-fibs-ok/

  • tamnca
    tamnca Member Posts: 3
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    Thank you! It’s very difficult. My mom lives with my sister and still is somewhat in denial that my mom has dementia. I am 8 hours away from them and get there to see them a few times a year. I call almost daily and get put in the middle a lot. I agree with your advice but my sister said my mom wants us to tell her that her husband has passed when she doesn’t remember. I feel like she is just going to reliving his death over and over. Thanks again for responding!

  • terei
    terei Member Posts: 801
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    This must be torturous for your mother. Yes, she is reliving it over and over as if it just happened. Get your sister the 36 hour day(book) or other informative information. She needs to sidestep direct questions like this and respond with a kind fib like ‘he had to go out of town for a few days’ or any other answer that is accepted by your mother.

  • H1235
    H1235 Member Posts: 1,523
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    My mom lived with my brother for a short time after diagnosis. He was in denial and made no effort to educate himself on how to navigate the difficulties that come with dementia. As a result she was exposed to situations and conversations that caused her a lot of stress and in some instances even put her in danger. Trying to get through to him was impossible. I was often told i didn’t know, because I wasn’t the one living with her. I eventually got mom into an assisted living facility and she did so much better. The idea that our loved one is always better off staying with family is not always true in my opinion. Has a DPOA been appointed? This is very important. I have attached a few resources that might be helpful.

  • tamnca
    tamnca Member Posts: 3
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    thank you so much for all the info. This is helping a lot. Part of the problem is that they live on the Oregon coast and there aren’t a lot of resources there.

  • psg712
    psg712 Member Posts: 642
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    My mom has rarely mentioned my dad (deceased almost 16 years ago) since going into MC, but on rare occasions she would point to his picture and say she hadn't seen him around for a while. I just said I haven't seen him either, I miss him too, we'll see him again sometime. Then changed the subject. It also worked when she said the same about her parents, who have been gone for decades.

  • JJ401
    JJ401 Member Posts: 393
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    DH’s sister died this week (of Alzheimer’s). She’s been in a nursing home for the past year and we visited monthly. Both seemed to enjoy the visits even though every month DH was surprised to learn she was in the nursing home. Then just before Christmas she stated quickly declining.

    Sunday morning we got the call that from sister#2 that she had passed. I told DH after I got off the phone. He questioned why, but did not seem overly affected. A few hours later sister#3 called. DH asked what sister#3 wanted, and when I said she wanted to talk about sister’s death, DH was surprised and said no one had told him.

    I haven’t said anything else to him about sister’s death again yet. I’ll mention it again when I know the funeral arrangements. I will take him to the funeral even though I am pretty sure that he won’t remember it by the time we arrive home. He will understand while we are there and have appropriate funeral behavior.

  • SiberianIris
    SiberianIris Member Posts: 98
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    One of my favorite dementia care experts is Rachel Wonderlin. She has a wonderful podcast called Dementia By Day. The episodes are short and to the point about many useful dementia topics. Hope this helps:

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more