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Admitting Dad to a Memory Care Facility

Megamom22
Megamom22 Member Posts: 8
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My Dad is going to be 89 in March and has recently been diagnosed with Moderate to Severe Alzheimers. For the past 8 months, my sister and I have been his main caregivers and we shared the responsibilities. However, in the past week my Dad has fallen twice and thankfully so serious injuries. He doesn't have conversations much unless prompted and his short term memory is gone. We are going to start looking into Memory Care Facilities. My feelings are all over the place as the stress of caring for him is getting too much for both my sister and I. But then I feel guilty for even thinking about placing him in a Memory Care Facility. Would like some input on how to deal with my feelings and look for the best possible care for him.

Thanks so much!

Comments

  • H1235
    H1235 Member Posts: 1,845
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    Welcome. Sorry you need to be here. Unfortunately people just assume that the best care for a loved one is going to come from family. I don’t think this is always the case. Mc will have a trained staff, activities and possibly a nurse or doctor that visits regularly to avoid him having to get out. Staff has seen the things you are struggling with before and will be able to manage without the anxiety and strong emotions you and your sister are feeling. The experience they bring to the table will make things easier on him. This will also free you up to be the loving son and daughter rather than the caregiver trying to convince him he needs to shower. Mc does not mean you can just drop him off and you’re done. There is still a lot to do. Consulting with doctors, talking with staff about problems that come up, managing finances and making sure he has snack or supplies not covered by mc. A mc facility is going to have a structure and routine (hard to do at home) that will give him some comfort. Some facilities can have a waiting list, so I would start looking soon.

  • JJinVA
    JJinVA Member Posts: 5
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    It’s always tough to make this decision because it feels like you’re sending them away and don’t want to deal with them anymore. But it’s likely that you’re not equipped to care for him, and all his needs, 24/7. It’s just a fact. The way I think about it is the trained staff gets to do all the dirty work for him and you get to go and spend quality time as he nears the end of life.

  • sandwichone123
    sandwichone123 Member Posts: 1,233
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    Hi @Megamom22 , I'm glad you found this place. The best way to start finding the best care for him is to visit several places. They're more different from each other than you might expect, and by visiting a few you learn what questions to ask. While activities are often a big draw, he may or may not be able to benefit from them at this point.

    Memory care offers trained staff who have days off and work by shift, so they can often be much more patient than family members who are trying to do it all with no days off, sometimes in addition to other jobs. They also have the whole place set up in such a way to benefit dementia patients, which can sometimes decrease the risk of falls.

  • Megamom22
    Megamom22 Member Posts: 8
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    Thank you so much for your comments. It made me feel that this is the best thing to do for my Dad. We are going to start our search for a Memory Care facility.

  • Megamom22
    Megamom22 Member Posts: 8
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    Thanks so much for your comments. In reference to consulting with doctors, problems and managing finances, my sister handle all that now. Will we be able to take him to his medical appointments as we currently do as we still want to be involved with his overall health.

  • Megamom22
    Megamom22 Member Posts: 8
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    Thank you so much for your comments and suggestions. It is starting to make me feel better that we are doing the right thing. We plan on visiting 3-5 memory care facilities to make sure we place my Dad in the right one. Both my sister and I want to be able to being his daughters again and enjoy our time with him!

  • H1235
    H1235 Member Posts: 1,845
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    I think in most mc facilities there will probably have a traveling doctor that comes to him. If you ask you can find out when that is and be there for the appointment. I would think any changes to medication would need to be approved by the DPOA. In Al mom got angry with me (she could handle it herself)if i attended doctors appointments. The doctor called me after the appointment and went over everything with me. In both Al and the nursing home there has been an online patient portal that allows me to see what is happening. As I said you will still need to be involved. I would ask prospective mc facilities how this works.

  • SiberianIris
    SiberianIris Member Posts: 116
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    edited January 20

    I've been on the dementia journey with my mom for nearly 3 years. I always dreaded when we'd reach the 'time for memory care' milestone. I even prayed she'd die before this happened.

    She's now been in MC for 5 months. She is in early stage 6 and needs help with all ADLs other than feeding herself. She is actually doing better now in MC than she was during the 6 months leading up to MC when she had 24/7 caregivers. Prior to dementia, she was very active and social. At age 97, most of her friends are dead or too incapacitated to do anything. Mom spent most her time at home shuffling from room to room looking out the windows and overwatering her plants.

    In MC she participates in most of the activities, and she's made friends with some of the residents. Now, if I asked her if she wanted to go home (which I don't), I'm sure she would say "yes", but that's because she has no comprehension that she needs help with all her ADLs. Her short term memory is almost non-existent.

    The first few weeks in MC were rough, but according to the staff, nothing out of the ordinary. Fortunately she had no memory of me being the one to take her there.

    Most of our visits consist of walking around the facility. When she sees things, like the piano, she tells me that people come and play beautiful music. When we walk past the area with musical instruments, she shows me the drums and says "this is my favorite thing to do". (This is a real revelation, because never in my life would I have imagined my very proper mother as a drummer 😁)

  • April23
    April23 Member Posts: 104
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    edited January 20

    Good question to ask the MCF is what mobile providers do they provide: podiatrist, eye doctor, dentist, barber/stylist, mobile lab, are common ones. Even if you're not ready now, at some point in his journey, you may choose to utilize these services. Also ask if they provide transportation to appointments, some do. But you can still take him to appointments yourselves.

    Most MCF will have a general practitioner that will make house calls to the facility. My dad has an NP that visits every 4-8 weeks and a geriatric doctor that sees him 1-2 times a year. They also do labs, urinalysis, x-rays, etc. He still goes out for specialists.

    Don't second guess yourselves at all, no one can do this without help. You're still caregivers, just in a different role.

  • Megamom22
    Megamom22 Member Posts: 8
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    Thank you so much for sharing this. This is very helpful and makes me feel better and less guilty about putting my Dad into a memory care facility. My Dad isn't very social, but I hope that once he is in MC, that will change and he will make friends, at least one. How did you tell your Mom she was going to a MC facility?

  • SiberianIris
    SiberianIris Member Posts: 116
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    edited January 21

    In short, I didn't. She was in late stage 5 at the time, so any explanation wasn't going to be understood or remembered very well.

    For the day of the move, I scheduled her for an appointment at the beauty shop - hair, mani/pedi, and afterwards my brother took her to a long lunch. While that was going on, the movers came to load her bedroom furniture and transfer it to the memory care. I packed some clothes and toiletries and headed over to MC to set everything up. We had to work fast, because doing anything ahead of time would have been upsetting for her.

    When she arrived at the MC, I and one of the staff (who is very experienced with move-ins) met her at the door and said "The doctor wants you to stay here for a little while for some advanced physical therapy." I only brought enough of her stuff to go along with the story that she's there for a short time. Since she's settled in, I periodically bring some more clothes and personal items.

    Since she had been undergoing PT to help with her balance and walking, and she loves PT, this went over pretty well. As she was being introduced to other MC staff, I faded into the background and let them take it from there.

    A move is hard for anyone, and harder for someone with dementia, so give it time. For the first few weeks, she needed additional medication to calm her. She is now back to just Lexapro.

    I have some additional posts about our journey into MC - just do a search for my username. Good luck!

    Here is a helpful video from Rachel Wonderlin, one of my favorite dementia care experts:

  • Megamom22
    Megamom22 Member Posts: 8
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    Thank you so much for all this information! I have been struggling with guilt and wondering how we were going to tell him. We took him to a doctor's appointment this morning and lunch after. As I watched him eat his lunch, it saddened me that soon he was going to move in to a MC facility. I know deep down this is the best thing for him, but still feel sad and guilty. You made me feel so much better! Once again, thanks so much!

  • CaliforniaGirl-1
    CaliforniaGirl-1 Member Posts: 167
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    I just want to say that MC has been great for my extremely elderly LO. Not only is she getting excellent care but she is in a community of her peers and recognized as an independent member so when she was capable of it, she had some social engagement and made some friends after becoming increasingly isolated and withdrawn at home where her friends had died or moved orher deficits were too overwhelming and her circle had drifted away and gotten smaller and smaller

    Even now on hospice, and having days where she is withdrawn and less responsive, there are still people she likes and people she doesn't like which is in itself stimulating. She enjoys the live music they have and the singing even if she doesn't participate. She even surprised us by participating in a balloon game.

    One thing that helped a lot, that we didn't start right away, was to encourage them not to let her sit in her room. For the 1st year she mostly came out for meals but watched TV and did solitary things in her room. Once she had a fall, I asked them to keep her out of the room and in the common area. Well that turned out to be a big win. She interacted more and was definitely less isolated and happier.

    Every family and person is different, but for her, when her dementia was less advanced and she was stronger, being in MC instead of in a family member's home definitely made her feel more independent. This has always been a hot button with her.

    I feel we are extremely fortunate and during the many years of fear and struggle to get our LO safe and get things under control and lurching from crisis to crisis, I would not have predicted this.

  • Megamom22
    Megamom22 Member Posts: 8
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    Thanks so much for your comments. This was very insightful in helping us realize we are doing the right thing for my Dad. I hope your LO is doing well!

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more