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Relieved, sad, brutalized, and bewildered

PlentyQuiet
PlentyQuiet Member Posts: 144
Fourth Anniversary 100 Care Reactions 100 Comments 25 Insightfuls Reactions
Member
edited 3:44PM in Caring For a Spouse or Partner

My spouse passed away yesterday.

Diagnosed with MCI/EOAD after a spinal tap 11/2021 age 61
Hospice 6/2025 age 65
Died at home 1/21/2025 age 65

Early onset can go fast, but that young heart can keep going at the brutal, brutal end. 6 days with no food or water, 2 days of agonal gasping. Excruciating.

I am so glad it is over for him. He is no longer a person with Alzheimer's. He has left behind the body that betrayed him and robbed our family of his laughter. He is off on new adventures and the kids (all in their early 20s) and I will take baby steps towards rebuilding and healing.

This is a stupid, ugly, rotten disease that no one deserves.

67294564616__57A02BD3-5B2E-48E5-B714-A4FAB795A139.JPG

Comments

  • BPS
    BPS Member Posts: 385
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    Member

    I think your title says is all.

    Peace and rest to you and to your husband.

  • MaryMN
    MaryMN Member Posts: 30
    10 Comments First Anniversary 5 Insightfuls Reactions 5 Care Reactions
    Member

    He sounds like a wonderful man. Wishing you and your family peace and strength as you navigate the end of this awful journey.

  • RetiredTeacher
    RetiredTeacher Member Posts: 299
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    Member

    Sending hugs snd prayers for you and your family

  • Chance Rider
    Chance Rider Member Posts: 203
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    Member

    I’m so sorry for the loss of your husband. My thoughts are with you and your family as you begin healing.

  • beachwalker5
    beachwalker5 Member Posts: 5
    5 Care Reactions First Comment
    Member

    When I look at that photo, I see a cool charming friendly looking dude that I bet was a fun guy to hang out and share a beer and a few laughs with. May the memories of the good times in earlier days stay with you in your transition. Wishing you peace and better days ahead.

  • Kat63
    Kat63 Member Posts: 204
    Fifth Anniversary 100 Likes 100 Comments 100 Care Reactions
    Member

    So sorry for the loss of your DH. May your good memories comfort you and your family.

  • Vitruvius
    Vitruvius Member Posts: 457
    Fifth Anniversary 250 Care Reactions 100 Insightfuls Reactions 100 Likes
    Member

    I agree wholeheartedly with your assessment of this awful disease. My sincere condolences and sympathy. I wish you peace, strength and healing in the days ahead. Your DH does look like a fellow I would like to have known.

  • troubledone
    troubledone Member Posts: 60
    25 Care Reactions 10 Comments First Anniversary 5 Likes
    Member

    https://chat.whatsapp.com/IyfD6t2EHeFB11LOSye1eI


    link to join our WhatsApp support group.

  • Jgirl57
    Jgirl57 Member Posts: 780
    Fifth Anniversary 250 Likes 500 Comments 100 Care Reactions
    Member

    RIP……, Hugs to you and your family

  • trottingalong
    trottingalong Member Posts: 904
    Ninth Anniversary 500 Care Reactions 500 Likes 250 Insightfuls Reactions
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    a beautiful photo. I’m so sorry for your family’s loss as well as your husband going through what he did.

  • wose
    wose Member Posts: 334
    500 Care Reactions 250 Likes 100 Comments Second Anniversary
    Member

    I’m so very sorry for your loss. Such a wonderful precious picture to hold in your heart.

  • tonyac2
    tonyac2 Member Posts: 177
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    Member

    I am so sorry for the loss of your dear husband. I pray you and your family find peace and comfort.

  • Marla13
    Marla13 Member Posts: 56
    Third Anniversary 25 Likes 10 Comments 5 Insightfuls Reactions
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    I am so sorry.

  • harshedbuzz
    harshedbuzz Member Posts: 6,157
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    Member

    I am sorry for the loss of your dear husband and the father of your children. Wishing you strength and peace as you move forward.

    Thank you for sharing that lovely picture.

    HB

  • annie51
    annie51 Member Posts: 527
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    Member

    I am so sorry for the grief that you are going through now. I, too, am glad for my DH that his struggle is over. He would not want to live that way and I’m sure your love would not either. I love that picture of him. Hugs and peace for you.

  • jgreen
    jgreen Member Posts: 180
    100 Insightfuls Reactions 100 Comments 100 Likes 25 Care Reactions
    Member

    May Perpetual light shine upon your DH; and may he rest in peace.

    God bless you and your family.

  • CMC62
    CMC62 Member Posts: 29
    25 Care Reactions 10 Comments 5 Likes 5 Insightfuls Reactions
    Member

    I am so sorry for your loss. I wish you and your family peace going forward.

  • ronda b
    ronda b Member Posts: 355
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    Member

    Your title is perfect. So sorry for all your loss.

  • marier
    marier Member Posts: 134
    Seventh Anniversary 100 Comments 100 Care Reactions 25 Insightfuls Reactions
    Member

    What a great picture of your DH. I agree with your assessment of this awful disease. Sending you hugs and prayers. Take care of yourself as you walk thru this time of grief and embrace yourself with your family and loved ones.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more

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