Our mailbox relocated itself...
Occasionally (or maybe frequently) I like to pretend everything is normal and then something very strange happens that snaps me back to reality. Last week it was DH calling me to tell me that he went to get our mail and that someone had removed our mailbox and reattached it in a new location. After a few minutes of me trying to make sense of what he was saying I asked him to look at the name/address on the mail he had taken from the box. It wasn't ours. He continued to insist that someone moved our mailbox but he was able to later go back and return the neighbors mail and find ours. Our mailbox has been in the same location for 25 years. He's never been disoriented like that before and since then he seems back to 'normal'. Could that incident be a sign of a downturn or just a random brain fart?
Comments
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My wife doing a couple of odd things like that recently also, forgetting more and asking odd questions then she’s fine. My diagnosed about 3 yrs ago
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We were in our driveway the other day and my DH told me to open the garage door. I explained i didnt have the remote and he insisted i did. I told him to show me where he saw it. He pointed to the truck key fob and kept insisting the fob also opened the garage. door. First time he had misidentified an object but he has also started forgetting things we talked about 5 min earlier. He is obviously progressing.
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TY for sharing. I vacillate between believing DH has ALZ and this is normal aging. He actually does have the diagnosis of ALZ but so much of the time he is pretty much normal…until he slips. The garage door fob confusion reminded me of when DH insisted the TV remote was ringing and he couldn't figure out how to answer it, and then he was all normal again. Does anyone else feel like they are making a mountain out of a molehill?
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This is very common and confusing for those of us seeing it and dealing with it. My husband would appear to be doing quite well and then something like you described would happen. But ever so slowly for us, those little things became more pronounced and showed itself on a regular basis. The tv remote controls were a big obstacle. Sometimes he had absolutely no problem navigating around the different apps. Now he can’t figure out anything with remote controls and the tv is nothing but a box of confusion.
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It sounds from these comments like your DS's are in around the same stage of dementia as my DH (moderate dementia). it's hard for me because I have to accept that I don't share any kind of reality with him anymore. I'm lucky in that I have two daughters who are both interested in supporting us both but I've been thinking of going back to weekly therapy if I can find someone who specializes in this field of caregiver support.
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….using her cell phone calculator to try to make a call….asking "how do I call my daughter on this?" when she's looking at text messages…..trying to write an email on her iPad when she's on her web browser….technology (cell phones, iPads, laptops, atm machines, self-serve check-outs at stores) seems to be a daily cognition tester/ stressor. Despite the daily frustration, I suspect it's probably still better for my DW to keep trying to use these devices than to give up and stare at the wall all day…
PS: I've programmed her iPhone to be in "assistive access" mode ("grandma mode" with only four apps showing on a single Home Screen) but she still struggles with it.
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Lately my husband has been confusing the tv remote for his phone. And sometimes standing and staring off into space. So far though no one’s moved our mailbox.
@beachwalker5 thanks for mentioning assistive access. Going to check it out for my husband’s phone.
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It helps tp know there are others dealing with similar things and this is "normal" for this stage of the disease. I try to have my husband do what he can, while he still can. His physical health is declining at a faster rate than his cognitive health. Static standing, walking more than a short ways is tough due to leg weakness but he still gets to the bathroom and makes his sandwich everyday. I wonder how long he will still have his mobility....Anybody in a similar situation?
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DW was diagnosed with EO ALZ when she was about 57. My experience on this journey has been that today's occasional mistakes are previews of tomorrow's limitations. For example, 4 years ago she occasionally struggled to operate the laundry machines. Today she is completely unable to assist with the laundry. Keep in mind however that everyone's journey is unique and different. Your experiences will be different than ours.
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Regarding the mail and Just to add our experience to the conversation. My DW with very EO dementia turned 50 this past week. For years she had worked from home and therefore was responsible for sending and retrieving our mail. Approximately 4 years ago she began leaving our mail in strange places (the garden shed being the most common). I would find mail not sent or mail received days and even weeks after the events. This was the source of several fights and frustrating conversations; and I now understand she was in stages 3 & 4 while this was occurring. Fast forward to today and DW is likely entering stage 6. She still loves to get the mail but no longer remembers it regularly and I never let her take the out going mail any longer. PS DW hasn't read or opened a peace of mail in over 2 years.
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It's very common for PWD to have difficulty and then seem normal. It makes us question everything. Someone on this forum explained it like our brains are electrical wires and sometimes they have a short and blink then they don't for awhile. I call it "lights on/Lights off" syndrome. That's why I kept a list of his behaviors so I could go back and look at them and see the progression and get a reality check. I think it can be both progression and a "brain farts" at the same time.
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Side note: Because of posts by both you and Bill 2001, I have begun regular updates on DW's behaviors matching them to the DBAT assessment tool. I do this written exercise about every 3-4 months at this point. Not only does it help me with doctors and family/friends who want updates but I quickly realized without doing these updates I was living in partial denial. Scaffolding our life together without seeing to what extent.
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I think even in those normal times there are still things going on that are hard to catch. Taking mom out to lunch she seems pretty normal. I have noticed that she always orders whatever I order. This could probably be brushed off as nothing. But it happens every time. I believe she is having trouble navigating the menu and ordering whatever I order is the easiest way for her to compensate. My brother and uncle have never noticed this and see no issue. She also has a book sitting on her nightstand with a bookmark. It appears she is still able to enjoy reading. If asked about the book she will even tell you she likes it. The same book has been setting there for 6 months with the bookmark in the same place. This gives you the illusion of normal. Things are not always as normal as they appear on the surface.
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I agree things are not as normal as they appear. A few years ago I asked my wife what she would do if I passed out. She said call 911. I thought good she remembers what to do. Then I asked her to show me how she would do it. Her phone was sitting on a little table right next to her but she picked up the TV remote and looked at it for a while and said she didn't know how.
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All of these responses are very, very helpful. A few comments based on the responses:
- DH also has difficulties ordering off menus. Sometimes I gently suggest what to order, if I didn't we'd never get our food. I think due to processing speed issues he can't always understand what he's reading and a restaurant is a noisy/distracting environment for him.
- My DH has not been able to reliably pay bills for over 10 years. First I just took over making the payments/writing checks as we were getting late notices on the bills he was supposed to pay. Now we have only 1 bill I can't pay online and if I hand him the envelope it may never make it into the mail. So now he just gets to pick the mail up but maybe that's going to end soon.
- Agree on the lights on/lights off analogy. I also keep notes on my phone and report them to his neurologist when he goes in for annual assessments.
- My DH also has mobility issues, mostly linked to his autoimmune disease and I do wonder if he is going to lose his mobility faster than his cognitive skills. His cognitive skills are on a pretty slow (but steady) decline but his physical issues seem to happen faster and more dramatically.
- It's always a good reminder that we cannot rely on our LO's in an emergency. I really need to work out how to handle that as all of my back up people are located out of state.
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My mailbox hasn't moved either, but mail taken from it might be found anywhere when DW gets it. Today I was told yes, there was mail but when I asked what was there she fished around in her multiple jacket pockets took out the PO box key and proudly handed it to me saying the box was empty. We went out for lunch at a restaurant that might be the closest immitation of a CT, NY, NJ diner im MA. It was more than she could handle. I ordered their American chop suey, she dittoed my order. (She NEVER would order it out, but she was looking for an easy way out of deciding). "It sounded good to me" she said when I asked her about it. It's the second time we've been there and she also dittoed my order the first time. I've read through most of the posts in this discussion and probably have experienced most. It becomes soooo frustrating!
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
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FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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