I was Angry and then tears (Venting)

Jeff H · January 30

Last night was terrible for me. My DW was agitated and confrontational all night. She kept me up until 1am. I was angry but I kept it to myself. In the morning, my DW was loving just like the person I married. I hate this disease! On our way to lunch today she was so affectionate. I couldn't hold back my tears because I know I am losing her to this awful disease! She saw my distress, but I said everything was fine. I HATE this disease!

SDianeL · January 30

so sorry you are going through this. You were angry at this awful disease! Understandable. It’s heartbreaking. Hugs. 💜

Chance Rider · January 30

I’m so sorry. This dreadful disease takes such an emotional and physical toll. Hugs 💜

persevere · January 30

The fact that you were able to hold it in speaks volumes about you. Not all of us can do that.

RobertaPR · February 6

Hi. first time posting. Anger is coming up often for me. How often are you dealing with anger? What strategies do you use to move past? So far I try to repeat to myself "her brain is broken, she isn't doing this on purpose" over and over. Also, I leave the room but I can't go far. Thanks for sharing. Peace to you.

Jeff H · February 6

It's tough but has gotten so much better after her neurologist prescribed Rexulti for my DW agitation and aggressive behavior. It's pretty much gone now.

Princessleah · February 12

https://alzconnected.org/discussion/comment/265411#Comment_265411

This is good to hear and gives me hope! My mom’s Neurologist just prescribed Rexulti and we are praying it works. It’s a bit scary because when you read all the drug warnings you almost wonder which is worse, the potential side effects, or the agitation, irritability, crying, restlessness that is getting worse at night. Thank you for sharing!!

Jeff H · February 12

https://alzconnected.org/discussion/comment/265839#Comment_265839

Rexuliti starts at 0.5mg and gradually goes up to 2mg. I was still seeing agitation and aggressive behavior when she was on the 2mg dose. Our neurologist increased her Rexulti from 2mg to 3mg per day (the maximum). It has been working great for the agitation and aggressive behavior. The side effect for my DW is sedation. That does give me some relief because she will sleep through the night. Once the dose is administered, it takes about 4 hours to have its maximum effect. Time your dose in advance of when your mom starts her irritability. I truly hope you will see the same results!

Arrowhead · February 12

My wife has been on this journey for over 10 years, and I still get angry over it.

McWit · February 13

https://alzconnected.org/discussion/75230/i-was-angry-and-then-tears-venting

Agreed. I hate the disease. Be thankful for those precious good moments. I don't get any of those.

Russinator · February 26

((HUGS))

yardman49 · March 1

Yes my situation is similar to yours. My DW has had several all night as I call them dementia episodes. She becomes very belligerent and and starts cursing and accusing me of all sorts of things. When I can mix her medication into her food for dinner we generally get a good night's sleep. Some nights she will not consume all her food or enough for the meds to take effect. Well, it is what it is, and I hate what this disease has done to her, and it is not getting any better and I know it will not. We do have our good moments also where she is lovable and affectionate but then things can turn into a torrent of accusations, yelling and sometimes throwing and hitting. I for the most part stay quiet and sometimes leave the room. During her episodes I do a 8 4 3, inhale for a count of 8, hold in for a count of 4 and then exhale to a count of 7. This usually gets me by but on occasion I will lose my cool. I am human and can take so much. It is like she goes in and out of reality. She does not remember being ugly and asks that I forgive her for anything she has said to hurt me. This is so tough!!!

My prayers are with you as you are not alone in this despicable journey.

Jeff H · March 2

https://alzconnected.org/discussion/comment/267121#Comment_267121

I am so sorry you have to go through this. We seem to be all in the same boat. It's such a strange and terrible disease. I still don't understand why it's not reported more in the media. There are some moments of glimmer and love but it can turn so quickly to the opposite. She will still take her medications which is a plus. I don't know what I would do if she doesn't. My prayers are for you and everyone struggling with this disease.

I was Angry and then tears (Venting)

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