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How to assume the "parent role" with your parent

Merla
Merla Member Posts: 221
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edited January 26 in Caring for a Parent

Both my parent with dementia and I are having a hard time with me assuming a more caretaker role. My parent is on the younger side for midstage dementia—early 70s and was an independent successful woman who lived states away from family for the past two decades. She rarely asked anyone for anything and also didn't get very involved in other people's lives. She was just very competent and independent and distant for my whole adult life.

It's so awkward for me to help her or take care of her. I have young children so I think my parent feels like I'm treating her like a baby and makes jokes like "yes mommy" referring to me. She is in memory care. This trip I had to more take care of her because she got super sick with a terrible cold and pneumonia and even passed out. So I was tending to her carefully and attentively and she noticed and laughed at me saying she can do all of this on her own not in a mean way but more matter of factly and also found it humorous that I would try to take care of her. It does feel awkward. But obviously this is what is in store for us in the future. Is taking a nurturing caregiving role going to come more naturally to me when the illness progresses? I feel like being a nurturing mother to my kids comes naturally to me but it's not coming naturally to me to be a nurturing daughter caregiver to my parent. My parent has spent my whole adult life being self sufficient and competent until now. She was the type To never ask for help. So it's just so awkward now.

I played a big role in getting her the care she needed etc and being an emotional support but it's the physical care that is so awkward for both of us.

Comments

  • H1235
    H1235 Member Posts: 1,919
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    I find this very awkward also. I blame it on the anosognosia and a bit of a personality change. My mom has never been excessively independent, but she is now. In the past she was always hesitant and quick to ask for help. Now she believes she is strong, capable and independent. She doesn’t want me to do anything for her and is resentful when I do. I can’t tell you how many times she has sarcastically referred to me a doctor (since I think I know everything about her health). Unfortunately she can be snippy and mean. It’s hard!

  • SDianeL
    SDianeL Member Posts: 3,304
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    changing roles for caregivers is difficult for both the caregiver and the PWD. Since she’s in memory care perhaps let the caregivers there care for her and you visit as the daughter rather than caregiver. I found that my DH didn’t resent the MC caregivers helping him but he did resent me. As your Mom progresses she may change and welcome the help. My DH did.

  • April23
    April23 Member Posts: 116
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    I try to let my dad parent me when he can. Sometimes walking through the facility, he'll tell me to keep my voice down because others are sleeping and I'll say, you're right dad, etc. I let him do what he still can, who cares if he makes a little mess or doesn't do it perfectly? ITA with SDianeL, let the caregivers perform their role and you assume the role of loving daughter as often as possible. I'm a daughter to a father so I don't do as much of the hands-on stuff. He let's me know when he's had enough of my hovering and I back off. And yes, it will become more natural as it goes on and she will probably accept more help as it goes on also.

  • Merla
    Merla Member Posts: 221
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    good points. I only see her every couple of months but I stay with her in room at memory care. This visit was hard because she was super sick with pneumonia for a 2 days and fainted so i was very cautious around her as I was as concerned about her fainting or slipping on ice. I do see her respond well to the caregivers which is a blessing as it took some time for this to happen. She is still physically healthy and strong so on a regular basis I don't have to take care of her physically but obviously the time will come when I will have to.

  • YKL
    YKL Member Posts: 8
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    Hi there! I hear how difficult and unnatural it is for you to be in this type of caregiving role with your mother, especially the physical care. It's also difficult for your mom, who is used to being independent, competent, and self-sufficient. I empathize with you. My father, who has vascular dementia, used to be the same type of person as your mom — a very capable, intelligent and independent person with a can-do attitude. Now, I sometimes have to pull up his pants after he goes to the bathroom. Or remind him to take out his mouth guard when he eats. Or — what really bothers him — when I check his math on a restaurant bill. After all, he was a CPA and doesn't like to be "audited."Yes, it is so hard to have this role reversal and have to parent the parent.

  • Merla
    Merla Member Posts: 221
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    hahaha my parent was also a cpa. So the type to have everything in strict order.

    It's just so awkward and unnatural for both of us.

    I don't know what the answer is except I guess it will become more natural with time. As the disease progresses.

  • poncemrs334
    poncemrs334 Member Posts: 7
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    So my husband and I are caring for my mil and fil who live in an AL facility. We are in the process of getting her checkef for dementia as it’s been really hard the past couple of years. My husband is only 34 and I’m 31. We have 2 children, a 4yo and 1yo so it’s been rough trying to juggle both lives. We’re still trying to figure everything out, but it’s also awkward for me as the dil to act as a parent to my mil. I definitely empathize with you.
  • BcmcWife
    BcmcWife Member Posts: 1
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    I can relate to this. My mom was one of the few women to work in the space program on the Minute Man project in the 60s. She was a coder in engineering for the govt and then was a successful real estate investor. She never needed or asked for helped. Now the Go-to person of our family can’t even navigate the shower without help and struggles to remember me, her only surviving child of 3, and where I fit in the family order. Neither of us ever expected something like this and the role reversal leaves her distressed. Especially considering I’ve been disabled since birth and she was always taking care of me through surgeries and daily tasks. I don’t have any advice other than this is the common theme of child/parent caregivers. We imagine growing up and taking care of them one day but when it happens we realize how ill prepared we really are ☹️

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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