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I was Angry and then tears (Venting)

Last night was terrible for me. My DW was agitated and confrontational all night. She kept me up until 1am. I was angry but I kept it to myself. In the morning, my DW was loving just like the person I married. I hate this disease! On our way to lunch today she was so affectionate. I couldn't hold back my tears because I know I am losing her to this awful disease! She saw my distress, but I said everything was fine. I HATE this disease!

Comments

  • SDianeL
    SDianeL Member Posts: 2,993
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    Member

    so sorry you are going through this. You were angry at this awful disease! Understandable. It’s heartbreaking. Hugs. 💜

  • Chance Rider
    Chance Rider Member Posts: 228
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    Member

    I’m so sorry. This dreadful disease takes such an emotional and physical toll. Hugs 💜

  • persevere
    persevere Member Posts: 163
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    Member

    The fact that you were able to hold it in speaks volumes about you. Not all of us can do that.

  • RobertaPR
    RobertaPR Member Posts: 1
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    Member
    Hi. first time posting. Anger is coming up often for me. How often are you dealing with anger? What strategies do you use to move past? So far I try to repeat to myself "her brain is broken, she isn't doing this on purpose" over and over. Also, I leave the room but I can't go far. Thanks for sharing. Peace to you.
  • Jeff H
    Jeff H Member Posts: 51
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    Member

    It's tough but has gotten so much better after her neurologist prescribed Rexulti for my DW agitation and aggressive behavior. It's pretty much gone now.

  • Princessleah
    Princessleah Member Posts: 1
    First Comment
    Member

    This is good to hear and gives me hope! My mom’s Neurologist just prescribed Rexulti and we are praying it works. It’s a bit scary because when you read all the drug warnings you almost wonder which is worse, the potential side effects, or the agitation, irritability, crying, restlessness that is getting worse at night. Thank you for sharing!!

  • Jeff H
    Jeff H Member Posts: 51
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    Member

    Rexuliti starts at 0.5mg and gradually goes up to 2mg. I was still seeing agitation and aggressive behavior when she was on the 2mg dose. Our neurologist increased her Rexulti from 2mg to 3mg per day (the maximum). It has been working great for the agitation and aggressive behavior. The side effect for my DW is sedation. That does give me some relief because she will sleep through the night. Once the dose is administered, it takes about 4 hours to have its maximum effect. Time your dose in advance of when your mom starts her irritability. I truly hope you will see the same results!

  • Arrowhead
    Arrowhead Member Posts: 492
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    Member

    My wife has been on this journey for over 10 years, and I still get angry over it.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more