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Mom was just screened for dementia

Christineells
Christineells Member Posts: 2
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Hello
I am very new to all of this and am reaching out for support. My mom who is 83 was just screened for dementia in the doctors office. She failed the test - was not able to draw the clock or remember the words. My dad is her caregiver and now cooks all meals and is starting to manage her medications and doctor apts. on top
Of the dementia my mom has alcohol
Use disorder. She is still drinking. On the surface if you see her you can’t really tell but she is forgetting some big memories that I remember her telling me about from her earlier years. My dad at this point acknowledges she has dementia but does not want further evaluations for mom and is not accepting any help. I am worried about him he is 85. How can I support my mom and also my dad who is taking care of her? I live 5 hours away so visit every couple months. I feel At a loss of how to support them from afar and i worry. Any advice or wisdom is appreciated I feel lost.

Comments

  • H1235
    H1235 Member Posts: 2,374
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    Welcome. One of the most important things to be done is to see a lawyer. A durable power of attorney is very important. It needs to be done while she is still able to make decisions for herself. I would assume she would appoint your dad, but there should be a backup listed in case anything were to happen to him. Without this if something happens to your dad, you could be in a very difficult situation. Since most people with dementia have anosognosia and don’t recognize their symptoms or limitations, it might be best to present this as just something that needs to be done since they are getting older. I would learn all you can about dementia. The more you know the better you will be able to help your mom and guide your dad. Would your dad be willing to let you take over bill paying? That’s something easy enough to do online. Unfortunately parents can be reluctant to accept help, which makes things even more difficult. It’s possible the drinking is causing this problem. Does her doctor know about the drinking. I really don’t know much about it, but you might want to look up Wernicke-Korsakoff syndrome. I will attach a few resources just in case you haven’t seen them yet. I’m glad you found our group. This part of the forum doesn’t get as much traffic. Feel free to post in caring for a parent or general.

  • Christineells
    Christineells Member Posts: 2
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    thank you ! Yes her doctor knows about her drinking. I saw her this weekend. She on the surface seemed functional. I would say though that it is like my mom’s light has been dimmed a little. She is not as sharp in terms of initiating conversations - more passive. She did repeat herself a few times and I went along with it and also when I brought out some pictures of her college years which she enjoyed. One time she did seem to lose track of time but was easily redirected. She was very happy and I was happy to see that. Thanks for these resources. My dad is taking care of her - he is 85 though so keeping an eye on him as well. I am going to try to learn as much as possible and visit them more often. The social interaction is really good for mom. We were very close growing up. Thanks 😊

  • zoobie565
    zoobie565 Member Posts: 1
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    My LO has "dementia" - doctor says Alzheimer's or alcohol related. I feel like he's not doing much for my LO because it's alcohol related. And I believe he's still drinking - seems to go on benders and then go through detox so I can tell 550 miles away. Unfortunately, the dr gave our attorney a letter of opinion that said he's not capable of making financial or medical decisions. The attorney said she can't go through with the POA now. So we're pretty much screwed. My advice to somehow get that POA before she declines even further.

  • harshedbuzz
    harshedbuzz Member Posts: 6,977
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    @zoobie565

    Hi and welcome. I am sorry for your reason to be here but pleased you found this place.

    Dementia— no quotes— is a proper umbrella term for cognitive changes. It is possible that your LO has mixed dementia, both an ARD (alcohol related dementia) and Alzheimer's. My dad had that combination as well.

    I, too, felt as though we were treated as second class citizens as a consequence of dad's ARD. His main doctor came from a culture in which alcohol is not typically used and seemed to see addiction as a moral failure and self-inflicted wound rather than a chronic illness. That said, there aren't enough dementia specialists to serve those who need one so I can understand the frustration of dealing with a non-compliant patient.

    Since the attorney agrees with the physician's opinion that LO doesn't have the capacity to name a DPOA, the family will need to look into guardianship/conservatorship.

    HB

  • Iffy49
    Iffy49 Member Posts: 13
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    edited July 27

    Maybe I’m being cynical but getting conservatorship or guardianship will mean the lawyer gets much much more money then drafting a POA.

  • Iffy49
    Iffy49 Member Posts: 13
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    Depending on what she drinks, you could get something with lower or no alcohol content

  • harshedbuzz
    harshedbuzz Member Posts: 6,977
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    True. But sometimes it's necessary if the PWD won't cooperate. I have an aunt and a friend who had to take the guardianship route for very different reasons. If the guardian prevails, costs are paid by the PWD.

    My friend's dad (retired PhD scientist) presented with extreme anosognosia and massive amounts of cognitive reserve. But at home, he was mishandling money, failing to take medications as directed, left the stove on multiple times and was eating rotted food. He lived in a carriage house on friend's property, and they'd see him daily but were unaware of how bad things were when he returned to his place at night. Dad fought both his sons on establishing a DPOA, so they were forced to go through the courts. Dad even hired an attorney. A neuropsych exam was ordered that showed significant incapacity and the sons were named his guardians.

    My aunt discovered her sister living in a cold dark house about to go to foreclosure for unpaid taxes. She also had some medical issues that needed addressing. She also had a medical and neuropsych evaluation ordered by the court. The one seeking guardianship was vetted heavily to be sure this wasn't a situation in which financial abuse might be a goal as her sister had considerable assets. The rest of the family was given a formal opportunity to oppose the guardianship being ordered. The court took every step to assure my aunt would be properly cared for.

    Another scenario I've seen play out is when a PWD is left to their own devices and ends up on the APS radar. If a family member hasn't proactively stepped up to take control of the situation, the state can establish guardianship via the courts and assign a professional to assume responsibility for the PWD. In this situation, family loses the right to have a say in care decisions going forward. The PWD's assets will be liquidated to pay for care and for the fees charged by the attorneys and the professional guardian.

    HB

  • Iffy49
    Iffy49 Member Posts: 13
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    Thanks for responding. At the stage my sister is at I cannot imagine telling her or forcing her to leave her home.
    My cynicism came from seeing an elder care lawyer who told us my sister was too far gone to sign a POA .

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more