mild to moderate MCI
Comments
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Welcome. So sorry about your husband’s diagnosis. You are at the right place for info and support. After you get your legal affairs in order, DPOA, Medical POA etc. learn all you can about the disease and how to care for him. First read the book “The 36 Hour Day” which helped me after my DH was diagnosed. Search online for dementia caregiving videos by Tam Cummings or Teepa Snow which are excellent. Two things I learned here that helped: 1) never argue with someone with dementia and 2) you can’t reason with someone whose reasoner is broken. His world is falling apart and many PWD take out their anxiety on their primary caregivers. Remember it’s not him talking, it’s the disease. Get in his world. Fib if you must. I would talk to his doctor about medication if he’s agitated. A Geriatric Paychiatrist is the best type of doctor to manage his medications. Get a referral to one if you can. Come here often for support or to vent. We understand what you are feeling. You are not alone. 💜
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Welcome. If your husband has not already had a brain MRI and PET scan, that is your next step to determine if Alzheimer’s or another disease is causing his MCI. There are blood tests now that test for Alzheimer’s. You can have MCI and not have Alzheimer’s disease. Get a referral for a geriatric psychiatrist for medication for your husband’s agitation. Don’t argue with him. His reasoning is broken. Accept the blame for whatever he thinks you did. Arguing with him will get you nowhere. As others have suggested, get your legal affairs in order now. You will have to take over all finances at some point. Get a list of all accounts with log in and passwords. Put all bills on auto pay. Get the same for computers and phone. Make sure your husband signs HIPPA forms to allow you access to doctors and medical records. Put TILE gps trackers on phones, wallet, keys, purse. They track the items and the person through an app on your phone. If there is a Mayo Clinic near you, get him into The HABIT Program. It will help both of you deal with this. Start using Brain HQ online games. It will help build neurons in the part of his brain that isn’t impaired. Look at The Pointer Study and Dr. Dean Ornish’s Lifestyle Program. This is how you slow it up. Come back here for help, The people here are extremely knowledgeable and supportive.
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Many with dementia have anosognosia. This is the inability to recognize their symptoms or limitations. Since they believe they are perfectly capable if something goes wrong it couldn’t possibly be his fault. When the caregiver takes freedoms away to protect them the person with dementia often directs anger and resentment their way.
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It's always sad to hear about his decline. Everyone's experience is a little (or a lot) different. Our path (now 10 years) began with an MCI diagnosis. I was told at the time by our psychologist that MCI can lead to AD but it doesn't always. Two years later she suggested Alzheimer's or some form of dementia had taken over and my DW should see a neurologist. We did and the diagnosis was AD. I hope your husband might have a more positive experience, but my suggestion is to get a diagnosis for him and then do the very best you can for him. God bless.
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I would like to read The 36 Hour Day book but I am afraid my wife will see it and get upset. She would get upset and would tell me that she doesn't have a problem. Any suggestions?
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Yes. Keep the book hidden and read while she is sleeping.
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Do you have a device you can read a digital copy on? Could you take a book jacket from another book and put over. Maybe you could do a makeshift paper bag cover. This might be a helpful read. I hope you can figure something out.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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