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VA social worker

I called the veteran's affair clinic because they now offer a 'coordinated' team approach to treating vets with cognitive problems. I received a call back from a VA social worker,but couldn't take it because HWD was hovering and I wouldn't have been able to talk. I was wondering if anyone else has had experience with them and if they were helpful.

Comments

  • marier
    marier Member Posts: 142
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    The VA has been extremely helpful in the care of my DH. THe VA's help has allowed me to keep DH at home. Currently he is stage 7. He is not service connected. We receive care from the Phx VA. The VA provides day programs, respite and in home help. Also provided bathroom safety bars, hospital bed etc..

    The Phx VA has a program called COACH which offers support and helps facilitate services for Vets and their family care givers. Although not all VA's have the COACH program. I was able to obtain services fairly quickly however I know others that have had some delays. Keep at it.

  • Michele P
    Michele P Member Posts: 336
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    We work with a VA geriatric team for cognitive issues. The team is excellent. We had zoom meetings with social workers, speech therapist, nurse, pharmacist. Ask to place a geriatric psychiatrist on the team. They will be able to help with medication if necessary for behavioral issues. The Elizabeth Dole Foundation is also an excellent resource. They help vets and their caregivers. They have an intake form on their website.

  • Chance Rider
    Chance Rider Member Posts: 261
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    A few months ago my husband’s care was transferred to a GeriPACT team. The team is excellent, my husband really likes his doctor, and we’ve been able to get appointments on short notice. The VA pharmacist calls us monthly to review meds as well as behaviors. She also reorders any needed meds and has in some cases increased dosages.
    His GeriPACT dr has had the social worker contact me as she was concerned that I need more support. During our last appointment I mentioned that I’m looking at having my husband’s huge, deep soaking tub replaced with a walk in shower. The dr arranged for a video call with an occupational therapy doctor who, after seeing the tub, recommended the walk-in shower and sent paperwork to get the project started.

    Our experience with the team has been better than I could have hoped for. I’m grateful we were transferred to them. We’re in Northern California. Because we’re about 2 hours away from the VA facility we frequently use local services through the VA’s Community Care program.

    I hope it’s a positive experience for you as well.

  • SDianeL
    SDianeL Member Posts: 3,148
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    we also received excellent help and care through the VA. The Social Worker was excellent for me. They have caregiver training that you must take. They sent a nurse to our home to evaluate our needs. If you are unable to leave your LO alone they will approve respite care so many hours per year. The agency they used in FL was Assisting Hands. The caregiver they sent was excellent. He called her “his lady” I got a monthly stipend for caring for my husband. There are qualifications for that. Definitely ask for Geriatric Psychiatrist. They are best to prescribe and manage meds for dementia. Ask the pharmacy to look at statin drugs. Some can worsen cognitive issues. I had to place my husband in Mc due to my cancer diagnosis. It was $6000 per month. I completed the paperwork to have him transferred to a VA MC facility 2 months later. He received excellent care there. If your husband is 100% disabled, the VA facility is at no charge and you get to keep his disability pension until he passes. My husband was happy there with other veterans until his dementia progressed and he became bedridden.

  • Bailey's Mom
    Bailey's Mom Member Posts: 206
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    An update…Yesterday the VA social worker called again and this time my HWD was sleeping on the floor, so I was able to go outside and take the call. He was very helpful and made me feel like I wasn't totally alone on this journey. He explained what help we could qualify for from the VA…HWD was only in the Navy for 4 yrs, does not have a disabilty and has too much $$ for anything that is means tested. But…to my surprise…I can have a caregiver for a few hrs, 3 times per week, some respite care and they have a daycare facility in my area that he can attend. At the moment his paranoia is so extreme that he would not allow a caregiver on the property, and has anasognosia so would not attend daycare. He is progressing rapidly so that may change at any time. His PCP is going to try Seroquel to see if it will help with his delusions, paranoia, sleeplessness (for both of us) and his anger issues. I asked the social worker about what I should do if my HWD became violent…he said that I would have to call 911 and they would send EMS, but they may or may not transport him. Apparently if HWD does not want to go to the ER they will not take him (that would certainly be the outcome). I would have not thought that possible, but it just happened to a friend of mine…her HWD was very angry and violent…she called 911 and they came, but didn't take him…she had to lock herself in a room while he tore out the screens in the windows and punched holes in the walls. Basically, he said that there were no good options available. Anyway, I was encouraged, somewhat, after I talked to him.

  • Victoriaredux
    Victoriaredux Member Posts: 148
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    @Bailey's Mom "Apparently if HWD does not want to go to the ER they will not take him (that would certainly be the outcome). "

    I'd review your legal papers and see if you don't have the authority under one of them to be able to tell the paramedics - I can decide his care. Hopefully , the PCP or a geri-psych doctor can find the right Rx mix to avoid such an anger outburst and it won't come to that .

  • Bailey's Mom
    Bailey's Mom Member Posts: 206
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    That's a good point…I do have DPOA and HIPPA…my PCP says to just call EMS and then say that you can't care for him safely at home if they try to leave without him, but VA says that doesn't work…I will call EMS and ask them what the policy is, since I have 2 differing opinions. Hopefully, seroquel will ease some of his aggressive, paranoid behavior…if I can get him to take it…he usually thinks that I am trying to poison him!

  • RetiredTeacher
    RetiredTeacher Member Posts: 342
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    We finally signed up fot VA health care. DH is 77, was in the army 3 yrs and has had other health care since he got discharged. After reading about catastrophic disability, I encouraged DH to sign up. We spent yrs trying to get a diagnosis from Kaiser. He's had 3 strokes, cardiovascular disease, emphysema, 2 vascular surgeries and has 3 aortic aneurysms. His medical record says cognitive disorder....rather vague. Ive been told likely VD from the strokes. Cognitive issues began with executive fuction drfecits. He does not want more tests, drs visits, etc but I know the VA will probably order them. I have heard they review his Kaiser records with release of info authorization. He is not far enough along to qualify for catastrophic disability but i am hoping resources will be avail in the future. Our income is too much for some of their programs. His mobility is really declining, struggles to stand from sitting, can't stand long unsupported and even with a walker can only walk very short distances. Does the VA offer anything for vets that aren't catastrophically disabled yet??? I know it's coming and want our ducks in a row. We haven't seen the VA dr for the first visit yet. Any advice would be appreciated.

  • SDianeL
    SDianeL Member Posts: 3,148
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    ask for a med you can crush and put in applesauce or pudding. Usually tablet pills can be crushed if they aren’t extended release.

  • SDianeL
    SDianeL Member Posts: 3,148
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    Was he in Vietnam? Exposed to Agent Orange? If so heart disease is on the list. So is Alzheimer’s. If he was exposed he should file disability claims.

  • RetiredTeacher
    RetiredTeacher Member Posts: 342
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    Ty. Although he served during the Viet Nam war, he was stationed on a micro wave site on a mountaintop in Korea. They went to Seoul to get supplies. I don't believe he was near the DMZ and I think he came state side prior to the spraying beginning. I'm sure the VA could check that but I don't know how to navigate their system since we just submitted enrollment paperwork. I'm glad there are resources for veterans with dementia. There is some hope that this disease will not bankrupt us financially. Ty for your input. I greatly appreciate the support I have received here. 🙏 for all of you.

  • Bailey's Mom
    Bailey's Mom Member Posts: 206
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    Thanks for bringing up 'Catastrophic Disability'…I had not heard of it before and HWD may qualify for it at some time. He has a similar service record as your DH, so doesn't have a VA pension and is means tested out of most benefits at this time. He has been signed up for VA healthcare for years, although he also has a PCP through medicare, and goes annually to a VA PCP for a small copay. He can visit the VA hospital and also get prescriptions for a small copay too. VA will pay for a little bit of caregiving & respite with no means testing or service related disability requirement…my HWD has anasognosia and with his paranoia won't allow anyone in the house at this point, so haven't tried it yet.

    Fuzzysocks…very good idea about the VA providing a free service in appreciation of his status as a veteran…going to try that one! He loves anything that is free…

  • Bailey's Mom
    Bailey's Mom Member Posts: 206
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    Thank you all for your excellent comments…you've given me some great ideas. I'm going to continue working with the VA to see what services might be useful…anything will help.

  • Michele P
    Michele P Member Posts: 336
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    Take advantage of any medical equipment and supplies that he is entitled to. We were told with my husband’s rating that medical supplies, diapers, waterproof pads, door chimes, gps tracker medical device, ramps, alterations to our home to accommodate a wheelchair are covered 100 percent. Medication is also free for both of us.

  • Lorita
    Lorita Member Posts: 6,183
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    Hi,I worked with social Workers in a VA Hospital for 23 years. A good social worker is worth their weight in gold and can be your best hope for any kind of assistance you need. By all means get in touch with one and get help. I'm sure there are more good programs and help now than when I worked with them.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more