Moving my mom to a new memory care tomorrow
so I'm on the process of moving my mom to a new memory care in a different state so she can be by me, her daughter and POA.
This whole process is throwing me for a loop. She complained non stop about her old memory care and was highly un engaged and isolated. She talked frequently about moving out to be by me. So the day finally comes when she is told she is moving and she has mixed feelings about it and says she wants to stay. Literally she would frequently tell me the place was terrible and how she had to get out because it was going to burn to the ground.
i meet her and my sibling at the airport and she is happy to see me but later it's apparent she isn't connecting that the person next to her is her daughter but she talks about her daughter in front of me as if she was a different person than me.
she was clearly told she is moving but she is now unclear what she is doing and why she is on this trip. I wasn't going to break the news to her at the airport or on the plane.
tonight we're at a hotel all tomorrow we're going to the new memory care. I don't know even what to say to her bc she isn't comprehending I'm her daughter. This possibly could also be due to the anti anxiety medication she was given for the flight. So what do I even say about what we are doing tomorrow?!!!
Comments
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@Merla
FWIW, I think this move is for the best for all involved. It's possible your mom may do better, once she's settled in, with more frequent visits from you.
Since she's confused, which may persist until she'll settled at the next MCF, it might be best to keep the actual move simple. I wouldn't mention the move. If her room is already set up, I'd arrange ahead of time to come around lunchtime, stay for a bit and then excuse yourself to the restroom and walk out of the building. Staff should be able to take over. If the room isn't set up, perhaps another night at the hotel while one sibling takes care of the details while the other entertains mom.
HB1 -
I agree with hb. I would avoid using the words moving, new place, or mc. It’s too bad she is so confused, but that might work to your advantage. See how she reacts. If she asks questions keep your answers very vague and just see how it goes. I hope everything goes well!
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I told my sibling he is going to have to do the drop off again bc apparently I'm just some woman that will be present at the drop off and my actual name will remain untarnished. Haha. It's very weird bc she will talk to me and say things like my daughter wants me to go to stay by her but I don't want to. And of course my favorite is the conversations with her imaginary boyfriend about how she will be returning right away. Is it possible she has developed schizophrenia???? She tells us she no longer needs a phone bc she can just talk and hear people and this new technology is great. She has regular conversations with this boyfriend.
I'm a little thrown about how she is acting but I think it's largely due to anxiety. I also think she didn't comprehend what she valued at the old memory care until it was gone and she did find comfort in the familiarity.Right now we are telling her daughter wants to celebrate Easter with her and that's why she is here. She was initially told she was moving by her daughter but got anxious about this so it became visiting me.
she is going to another location of the same chain she was at so it looks very similar but it's a smaller version so maybe she will find comfort in this. My husband and kids set up her room but I would like to make sure it looks good.I last visited her in late January and she was so much more coherent and knew exactly who I was. I started to make plans to move her back then but it took a while to make it happen meanwhile she has declined dramatically (uti, psychiatric hospitalization) so I wonder if I missed the ideal window to move her. I still think her care will be better by me and it's not like I'd have her stay at the old memory care bc her imaginary boyfriend wants this.
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I have moved a parent in MC cross-country too, so I can relate to what you are going through. I echo others here: you are doing the right thing. Go forward, don’t second-guess. There is no ideal time for a move; it is always hard.
This is a difficult, even traumatic event in your own life. Give yourself grace. But if I may offer advice? Concentrate on the present, what you can do now… You need to get your mom safely from point A to point B. All the rest of it—whether she knows you, whether she is anxious or has a more serious psychological condition—all this is noise (understandable noise) that is making the situation worse for you. Take a breath. Be proud you are doing the right thing for your mother. It honestly doesn’t matter whether she knows what is going on; if she could comprehend it all, she wouldn’t need MC.
I agree with others that after the move (I too would call it a “visit”), things are likely to improve, although it may take a while.
But just think: she will be near you, you will be near her, and you will be able to help her in a direct way and know what’s going on. You’ll be able to develop relationships with the caregivers. And if you’re anything like me, after this move you will suddenly be able to sleep at night for the first time in a long time without waking up in a panic, wondering if your parent is safe and being treated well.
My dad is at a stage where he often tells me about his daughter and sometimes recognizes me as his daughter (usually within the same visit). I have learned through this forum to be grateful that he still knows that he has a daughter and that when he speaks of this person, he is affectionate. This is a true blessing. He can speak her (my) name. Sometimes he says she is bossy, but he’s not wrong about that, haha. It has come to be OK.
Hang in there. You are doing the right thing. Come here often. We will support you.
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Moving can also cause a kind of sundowners so it may take a few days for that to clear. My grandfather (years ago now) every time he flew on a plane, he was very confused for several days after. He even told us his son got off the plane on the way … Over Boston… He was 84 with mild dementia at the time but travel really affected him.
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God bless our mothers!
Mine moved into an ILF in Sept. 2024. Over the course of the past 6 months, she has increasingly stated she wants to move/to leave. Yes, some times wanting to go back home to her previous marital home, other times to her childhood home.
Interestingly, her discontent started revving up as she was recovering from Anogsnosia. She is now keenly aware of having dementia and does not want to decline further, around her new found friends at the ILF.
When I told her she was finally moving, rather than rejoicing, she told me that moving now is too soon as she hasn't even settled in to her new apartment. Like you, I was flabbergasted!
Hugs to you! You are doing the best thing bringing her closer to you.💯
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my sibling did this type of a drop off 1.25 years ago except he didn't make a clean break and they had a very dramatic parting and then he sneaked away using the bathroom as an excuse. the former memory care advocated this methodology.
This new memory care (same chain) is as more of the mindset there is no one approach. So we had a family day at the memory care where family has come and gone and returned but she hasn't been left completely alone. She has progressed quite significantly between these two drop offs so this time around I'm concerned with severe disorientation about where she is. She seems to have forgotten she took a plane ride. So she think she can just drive back to her old memory care. So they said to stay the night with her. I am staying with her bc last night in the hotel she woke up not knowing where she was. My plan tomorrow is to have breakfast and leave to get my kids and come back for a family easter celebration and then leave after this.
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I thought this move would be hard but due to different reasons. She has decided a lot in just a few months since I last saw her. So I'm dealing with a different person than I knew a few months ago when I visited. She was relatively stable until a few months ago. I don't regret the move bc I am certain from an objective standpoint she will be better care for here but I of course can't control how her mind reacts to this move. I just could not manage her care well from afar. Her room looks great and is homey and comfortable. This memory care is smaller and much more homey. It feels like a small to medium sized apartment building. I really like it. My kids love coming here which is pretty amusing, they love the pets, snacks, games, juice and grandmas tv tablet. And the staff seems great.
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@Merla
It sounds like things are going as well as they can at this point.
The confusion may be temporary, or it may be related to the disease progression. It's not unusual for spousal caregivers to report confusion and wanting to "go home" while standing in their own home. In this case home is more of a feeling of security than a place.
HB0 -
I know, after hearing how her old memory care was "trash", "fit to be demolished or burned to the ground" and how she had no friends bc the other residents weren't her type of people, I was floored she wanted to go back.
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in this case she is able to express she just misses familiar face and routines as she says as much. She is confused about all the new stuff. Ie she woke up in the morning and was like what is this, a bed? What is this? The bathroom? Am I supposed to use this bathroom? This table? What's it doing here? Her room is much smaller than what she was used to but it's dramatically nicer since I decorated it and the facility is only a few years old. However she is yearning for her memory care issued barren room with the least comfortable bed I've ever slept on in my entire life. I honestly wonder what other residents and make if her. She looks like an under cover movie star doing firsthand research on living in a memory care for sm acting role. She has taken to wearing a black athletic cap and huge sunglasses at all times along with looking younger than a lot of the children of residents. She looks like a major oddball in the mix of residents.
The good thing is that I've been able to come and go though this may change when I really leave. so far I'm happy with my decisions on how to transition her.
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I doubt it’s the old MC place she remembers. It’s a feeling. Many PWD want to go home and they are living in the same home they have lived in for decades. To them home is a feeling not a physical place. Give her time to settle in. It may take several weeks.
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maybe but it really feels like she wants to go back to the old memory care. She complained about the place non stop but she apparently was comfortable there. Objectively where she is much better ie less institutional, less depressing, less overwhelming, newer, better view from her window, nicely decorated room. Not that her former memory care was a bad place but pretty much any person without dementia would prefer the one she is at.
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The new place sounds great - family closer, smaller facility , you understand their corporate "think."
Don't fret trying to intellectually figure out what she is thinking as if it it a Rubik cube - as others have stated Mom is reacting to the change on an emotional level. Not like she's thinking the nightstand would look better over there but doesn't want to say anything to you to spare your feelings. Her mind is absorbing the new visuals and the changes- the sun's position in the room etc.
I've heard an amazing array of opinions from one of my PWD about their room of over 5 years - they got there "last night"; it's their Doctor's house, it's a hotel-how can they settle the bill? , and always amazement I know that they are there.
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I actually know exactly what she is thinking because she says many of her thoughts out loud especially in the morning. But it's not like she is analyzing the situation correctly but I can hear her trying to make sense out of it all in her own way.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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