Where do I go from here?
Comments
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You are dealing with a lot here. If your father has not seen an elder care attorney I would definitely recommend that. He needs POA if he doesn’t already have it and they can also help him figure out the financial side of care. It seems like your mom could use some support medically as well. I would definitly call the doctor who prescribed the Rexulti and describe her crying symptoms. It sounds like your dad could use more help on a regular basis. Maybe daycare a few days to start or someone coming in the help for a few hours as needed weekly. Some geriatricians see patients younger than 65. Many have social workers as part of their practice as do hospital based memory care services (neurology, cognitive testing etc). They can be helpful in talking through what level of support is needed. I would also recommend Dasha Kiper’s book Travelers to Unimaginable Lands. It helps to understand the caregiver role and why conflict can arise as well as the neurology behind the dementia. I commend you for wanting to keep the lines of communication open with your dad. I know others will chime in here with useful suggestions. It sounds like you are already offering so much support to your parents. It’s not easy.
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Thank you very much for the information. I will surely look into all of these suggestions.
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welcome. Sorry about your Mom. For people with dementia, home is a feeling not a physical place. She wants to go home due to her anxiety. Talk to her doctor about medication to help her. Be specific about her behaviors. When she asks to go home, fib to her or distract or redirect. Tell her you will go later or tomorrow. Redirect by changing the subject. Distract by offering a treat like ice cream. Read the book “The 36 Hour Day” and search online for dementia caregiving videos by Tam Cummings or Teepa Snow. Come here often for info and support. 💜
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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