I needed an outlet to rant sorry I rambled
I feel like I'm going crazy sometimes. I know that this disease causes people to act different and can alter emotions but I don't know how to handle her irrational anger. Everything is my fault even when its something completely out of my control, I know I can't reason with her but I just wish there was something I could do, at least do something so she not angry and arguing.
Like I said I don't live with her so I can at least get a break everyday but I'm so tired of it, I don't want to abandon my parents and leave them high and dry with her but I feel like I'm so close to my breaking point. I'm really hard on myself, I feel like I should be able to handle this better especially since I don't live with her and get time away from her everyday.
Comments
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Welcome. Ranting is definitely welcome here. We get it. So sorry you are going through this. Anger and resentment are not uncommon with dementia and are often directed towards the caretaker (ironically the one doing all the work). You are absolutely right not to argue with her. It will serve no purpose and you will still be wrong. Her brain is not working correctly. Many with dementia also have anosognosia this is the inability to recognize their own symptoms or limitations. Since they think they are fine they get angry with anyone who tries to help them or limit their independence. Sometimes distractions work (ice cream) or just sympathizing with her might work, but probably not often enough. You said she acts kid a child. I will attach a staging tool. If you look closely you will see that it actually has an age equivalence at each stage. My mom told me “ you’re not the boss of me, I can do whatever I want”. Have your parents talked with her doctor about medication for anxiety. Even if she is already on something, it might be time to increase the dose. The right medication and dose will not make her a zombie! You might also ask your doctor about medication. I put it off for way too long, but it has helped a lot. I know I sound like I’m just pushing drugs, but I don’t know how you can get through this without them. I’m glad you found our group.
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I agree withH1235. Increasing current meds or switching to another one until her anxiety decreases. My DW is on both Zoloft and Serequel. It works most of the time. May have to increase Serequel though. I also have introduced CBD gummies which help too. Keep watching here and you will get great advice from people who have been in your shoes.
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Hi Olliepop, I'm sorry you're here. It's hard for everyone when a member of the family has dementia, but it is not reasonable for you to give up your twenties to care for your grandmother. I am assuming you are not receiving any Social Security income for the work you do, and you're not going to get much credit putting family caregiving on your resume.
It may be time for your parents to consider applying your grandmother for Medicaid if she is requiring more than family caregiving can provide—it sounds like they're working during the day but she's becoming more than you can manage alone.
No matter how much of your life you give up, your grandmother is not going to get better, but your lifetime income is dropping by the day if you are not in school or developing a career. Please know that it's right and proper for you to put yourself first. If your grandmother raised you, it was so you could build a life, not so you would spend your young adulthood caring for her.
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I agree with sandwich. You need to be working and building your current and future income and your retirement savings. Because you don’t want your future kids to pay for you ( if you have any)… and if you don’t have any, you need to have enough savings to take care of you. Your grandma is your parent’s responsibility. I have a feeling you will be taking on responsibility for your parents at some point since they let you take responsibility for your grandma rather than tell you to concentrate on yourself.
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My ex and I were in your shoes early in our marriage. We never stopped working but had the daily stress of helping with the care of a relative. Here’s my advice to you: you are too young to put your life on hold and help with this care. You need to live your life and work. Not working now with have a severe impact on your income and future job opportunities. If your parents need help, they need to figure out if that involves in home hired care or out of home placement. Please, do not get guilted into putting your life on hold. My relative had Alzheimer’s for 20 years! It changed our lives forever and led to divorce.
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I agree you should be living your life. If you do choose to continue to care for your grandmother, learn all you can about dementia and how to care for her. First never argue with her. You can’t reason with someone whose reasoner is broken. Apologize and promise to never do it again even if you’re not in the wrong. Redirect or distract. Learn what triggers her. She is like a child and it will probably get worse. She needs anti anxiety medication. Talk to her doctor asap. Read the book “The 36 Hour Day” and search online for dementia caregiving videos by Tam Cummings or Teepa Snow. Give these suggestions to your parents too.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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