Moving my mom - which is best
My friend, who is currently helping care for her sister with Alzheimer’s, and a friend of my mom’s, who cared for her mom after being diagnosed with Alzheimer’s, both say I should move my mom sooner than later so she can become acclimated with her new surroundings and doctors and such. Right now she lives 2 hours away. I’m concerned that is too far to be able to assist with her care and I nor my mom have lots of money to pay for someone. My questions are: is it still good if she has her own place and is within 10 minutes of me or do I need to sell my home and have a dual dwelling place or does she need to live with me? I don’t know how fast things change and I want to allow her as much freedom as possible but do what is best for her also.
My second question is…. Is within 6 months a reasonable amount of time to move her or is it suggested sooner?
Thank you all.
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Welcome. I’m glad you found our group. It’s almost impossible to gage how quickly things will progress. One of the most important things to do early on is see a lawyer. You (someone) should be appointed durable power of attorney, medical power of attorney, a living will would be good and of course a will. You may also want to ask a lawyer about financial matters. In some states Medicaid will cover assisted living or memory care, some will partially pay (leaving family to cover the balance), most don’t cover them at all (leaving a nursing home). You will want to figure out what the options are in your state. Consider the value of her house and how long it will cover the cost of al (get some rough pricing ). If you bring her to live with you and you work outside the home, then she will be alone all day. That may work for a little bit but probably not very long. Even if you work from home it’s going to be very difficult to entertain her and keep her out of trouble while working a full time job. If you have to bring someone in to stay with her it’s going to be expensive. I would not even consider buying her a home near you. An apartment close by may work for a short time depending on where she is at now. In my opinion having her 2 hours away in her own home is not a good idea. There are so many little things you just don’t even think about that may be a problem. My mom got a new toothbrush every 6 months when I brought her to the dentist. When I moved her out of Al I found 4 new toothbrushes still in the bag from the dentist. She hadn’t changed her toothbrush in about 2 years(ew). Keep in mind she can lose a skill at any time. Just because she was fine with it a week ago doesn’t mean she is okay with it now. The idea is to stay one or two steps ahead so she is not left in a dangerous situation. This requires constant monitoring (better than I did with the toothbrush). The ability to handle finances is one of the first skills to go. If you haven’t already, you may want to get involved with finances. They are so vulnerable to scams at this stage. If your not careful she could lose everything. As far as moving her within 6 months, I don’t know. You might be pushing it. I was told when mom was diagnosed that she was not safe to live alone. Have you asked her doctor for their opinion on living alone? By the way a patient portal is a great way to communicate with her doctor. Giving up their freedom is very hard. If she is willing to consider a move now, you might want to take advantage of that while you can. Mom accepted her diagnosis, but within a year she believed they had made a mistake and she was fine (anosognosia). I will attach a bunch of resources and links. I hope something here will help.
https://www.medicaidplanningassistance.org/medicaid-eligibility-income-chart/
https://www.consumerfinance.gov/consumer-tools/managing-someone-elses-money/
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We were able to get my MIL into a memory care facility in her small town only because she was in the rehab portion of the facility after having knee surgery. She never would have agreed to move to memory care (anosognosia) and would certainly never have agreed to leave her small town to move closer to her family who are 90 minutes away.
Fast forward 3 years and we are finally moving her closer to us. The frequent need to drop everything to take her to a doctor appointment or pick her up from the ER became unmanageable. She also missed out on attending family functions that she could have been capable of attending at the time save for the fact nobody wanted to add a 6 hour drive to the day's agenda (Two 3 hour round trips to get her/bring her home). I know it will be harder for her to adjust to the move at this stage. I wish we'd have moved her closer immediately.
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thank you for the resources
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Welcome. Sorry about your Mom. I would move her in with you until you can make better arrangements. You will have to have 24/7 care at some point either at home or in a facility so it’s important to see an attorney immediately. People with dementia live 3-20 years and there is no way to determine how fast she will progress so make decisions and prepare now.
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We just went through something like this with my mom. She lived on her own 2.5 hours away from me after my dad died in December. She started struggling on her own; was not cooking or eating right, we had to take her car keys so she was stuck at home, troubles with understanding schedules and calendar, inability to deal with her bills or her mail, occasional problems using her cell phone and remote control, and just extreme loneliness. We took her to see an AL facility near me and within a month she agreed to move there. We chose it for the reasons you mentioned, and also because it is affiliated with an excellent memory care facility that I know she will eventually need
She does not love living there and I do feel guilty— she would love to live with me and my husband—but our house is not safe for her and I don’t have it in me to be a full time caregiver of a dementia patient, as much as I love my mom. But now she is 5 minutes away from me and I see her every day, and she does love that. It’s no bed of roses, but I know she is safe.
I think you should start now to prepare to move her close to you; a lot can change in 6 months. We have been quite shocked by how much my mom has declined in just the last couple months.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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