DH asking “What’s wrong with me?”
DH is under hospice care, is bed bound, and I have been told he likely won’t last the summer. He asks me, “ what’s wrong with me.?… when can we leave?…why are we here?”…. I have not said “ You are dying”. I have mentioned Alzheimer’s is a difficult disease, that it is affecting how you feel…but he doesn’t remember or know that he is terminal. I will talk to hospice nurse on Monday, wondering how others have handled these questions. He needs to know , how much do say?
Comments
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I honestly would just say you are having some memory issues and the dr wants you to stay here til you are better. I would not get into details at all. If you do say he is dying, I would be afraid he will be traumatized over and over every time you would say it.
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Just tell him his legs are weak right now and he needs to rest while they get stronger. That you need help taking care of him while that happens, so he’s where that can be done.
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thanks for the suggestions, good answers all……….he has declined so much in past few days, he isn’t asking any more. Hospice nurse has shortened the time frame, he is mostly sleeping 23 of 24 hours….
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First…big hug.
I like the suggestions. I don't know if this is helpful, but my therapist said to me a few months before hospice, "Have you considered thinking about what you'd regret not saying to your spouse?". I spent the last couple of months distracting my DW some with stories of our meeting, telling her how much I've loved our life together, how sorry I was for being a jerk sometimes and that I'd always love her. Stuff like that. My DW responded with such happiness to much of this. Honestly, I think saying I was sorry for being being a jerk sometimes was maybe most healing. Hahaha. She really loved hearing that I loved her life together and agreed she did too.
I'm so happy I said what I said to her before she passed. It still brings me peace.
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keep talking to him. Hearing is the last to go. Hugs. 💜
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I'm a new member. This is my first comment. DH is also on hospice care, at home. He is bedridden now, has progresssed to sleeping 23 hours a day, eating and drinking very little. A former non-stop talker, he speaks in one work whispers now if at all., so understanding him is a challenge. Although his short-term memory is far gone now, and he no longer shows interest in any of his former passions like technology and photography, or even TV, he retains a surprising amount of long-term memory and awareness. I appreciate the other comments here. Some of the comments were helpful to me as I navigate caregiving (with an abundance of help from children and more). I have cognitive decline, which isn't helpful. We are both in our 90's and have been married 72 years. I am grateful for the wonderful years we had together before things started falling apart about 6 years ago. Though we were fortunate to never have Covid, life is separated into before and after Covid.
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I cannot give any good advice but my heart goes out to you and what you both are experiencing. I'll keep you both in my prayers.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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