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Mom and assisted living

Suzabata
Suzabata Member Posts: 2
First Comment
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We recently moved my Mom to an assisted living facility where she has her own apartment and was able to bring her dog with her. She was diagnose with alzheimers. She is calling us constantly, as many as 20 times in a day. She crys and says she wants to go home. It's not possible for her to live in her home any longer because she can't live by herself anymore. Neither of my sisters or myself can care for her and we are spread out over several states. She is in a facility close to one of us with grandchildren close by. She is visited on a regular basis but insists no one has come. We need advice on how to handle her constant calls and how to handle her when she is insisting on going home.

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  • Suzabata
    Suzabata Member Posts: 2
    First Comment
    Member

    Any help or advice would be greatly appreciated. We're new at this and it's so difficult.

  • JulietteBee
    JulietteBee Member Posts: 438
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    Hugs!🫂

    You will soon come to the harsh realization that some of those calls MUST be sent to vm, to help preserve your mental health.

  • pjasso
    pjasso Member Posts: 19
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    Member

    That is heartbreaking, I'm sorry.
    My mom has been in AL and is happy where she is living and tells everyone she made the decision to move closer to me. It's okay with me that she changed the narrative (she also says she decided she didn't want to drive her car in the SF Bay Area so she sold it), again, her own narrative, which works for me.

    My mom is moving into a more moderate Alz stage, and is demanding buying new things, iPads, a new printer/scanner/copier etc. because "they don't work", when is it actually "user errors". But she is really escalating her demands and texts me many times a day, angrily and demanding and will call me at least once or twice and leave similar voice message.

    I'm new to this group, and one of the members suggested a burner phone! I'm getting it today! I will check her texts and calls every morning (when she does down for breakfast) and every late afternoon before she goes down for dinner- that way she is not likely to respond to my text with an immediate response or call.

    I'm sending loving, reassuring messages, and just telling her, I haven't forgotten her printer and am taking care of it. It is so so so hard! But the constant demanding texts and calls were killing me, stressing me out, and making me feel sick. l'm putting into place new boundaries to take care of me, so I can better take care of her. . . . . I'm on Day 3 of this new plan!

    I hope your mom will settle and get into a nice routine.

  • harshedbuzz
    harshedbuzz Member Posts: 6,456
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    @Suzabata

    It sounds like it's early days at the AL for her. Most PWD take around 6-12 to settle into their new AL when coming from home. The burner phone is a great idea. Otherwise, you can let calls go to voicemail and call back when you're up for it.

    Kudos to you guys for finding a place that allows her to keep her dog. That said, if this is a hospitality model AL rather than a higher acuity AL for MC/MCF, the problem might be that she isn't appropriately placed. A cousin placed her mom in an AL when she was really too impaired to be at that level of care. She missed meals, the other ladies soon realized she couldn't keep up with their conversations or activities and she ended up actively shunned by the resident mean-girls. Sometimes when a family is ready to accept AL, that cruise has already departed and their LO already needs MC.

    HB

  • harshedbuzz
    harshedbuzz Member Posts: 6,456
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    @pjasso

    When you set up your burner phone, it is suggested that your outgoing message be personalized for your LO.

    One friend I know recorded something like "Hi mom. I'm so happy to hear from you but I can't come to the phone right now. I'll call you later. I love you."

  • Emily 123
    Emily 123 Member Posts: 884
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    edited May 9

    Hi Suzabata,

    It's all driven by the disease blocking her ability to retain new information, and there's not much you can do about that. Sometimes you can find a reason for why they're in a new place that resonates with them and it sticks in their memory with enough repetition. My mom accepted her move to MC because we told her the doctor ordered her to do inpatient rehab. Since your mom can no longer imprint events into her memory it's as if they've never happened. That extends to recognizing the environment around her—it takes a lot of repetition for the brain to be able to work around the disease and imprint a new environment or routine. It's likely seeing a phone makes her want to call to find out why she's in some new place. The burner phone will work great. I'd say it took my Mom (stage 4/early 5) about three weerks to start to know the routines in the locked door AL, about 6-9 to get comfortable. She was okay there until her physical needs accelerated, and at that point it became very clear that, contrary to what they had told us, the facility expected us to provide aides to assist—they reserved their memory care for the late stage residents as well, and had become so understaffed that they couldn't provide basic services like room cleans, so it was time to move on. I wish I would have been able to get her into the MC she ended up at much sooner, but at least by pretending she would have her own 'apartment' we could get her to make the initial move.

    I always say this, because it made such a difference for my mom: Consider seeing if her healthcare provider could prescribe or adjust some mild anti-anxiety med to help her through this transition. My mom's AL never would follow through, the MC did immediately, and it was like night and day in terms of Mom's peace of mind, without making her groggy.

    This helped me:

  • pjasso
    pjasso Member Posts: 19
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    Wow! What a great suggestion . . . I'm not sure my mom is at that low of cognition to accept it. She would most likely question why I did that! LOL

    But I do like the idea of personalizing it, "in general" and not mention her, but something like, "Hello, Sorry, but I can't take calls right now. I will check messages at the end of the day", or something like that, without saying, "Hello, Mom", but I do love that thought

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more